We are pleased to announce the forthcoming 13th Brains for Brain Foundation (B4B) Workshop. B4B is an International Task Force (chaired by Prof Maurizio Scarpa) composed of outstanding scientists and ‘clinicians’ who are leaders in the neurological field.
3rd International Homocystinurias Patient-Expert Meeting on Thursday 28thFebruary – Friday 1st March 2019 in Rome, Italy.
SSIEM Academy Clinical and Laboratory Scientist courses will be held in Zurich, Switzerland on the 29th and 30th April 2019.
The 7th radiz Rare Diseases Summer School will take place at the Kartause Ittingen, Warth (Canton Thurgau), Switzerland and will focus on a wide variety of subjects in the arena of rare diseases, from disease mechanisms and animal models, to improving diagnoses, to novel therapeutics.
On 7th December the European Medicines Agency hosted the 16th joint meeting with the European network for Health Technology Assessment (EUnetHTA). EMA and EUnetHTA have been holding regular dialogues since 2010 and they are an opportunity to progress the EMA/EUnetHTA work plan.
RARE2019 will follow on from the success of its predecessor, addressing the challenges of Rare Diseases Treatments as well as new therapies on the horizon. It will expand on so-called "generic topics", such as clinical trials' design, funding for research, digital health, big data on the one hand and focusing on the individual patients for innovation in both drug development and management.
We successfully managed to create the Patient Board, which represents 276 patient groups established in 19 countries across all disease areas covered by MetabERN. We have therefore formed a Patient Steering Committee that will work hand-in-hand with the Medical Steering Committee to ensure that MetabERN is a truly person-centered European Reference Network. Now that a sound governance structure is in place, we are developing an Action Plan that will be discussed at the next Patient Steering and Executive Committees Meeting on 12 January in Brussels.
On November 21 and 22, the 4th Conference on European Reference Networks took place in Brussels, Belgium.
This Winter School is organised as part of the “Next Generation Life Scientists” Graduate School of Research.