Three key documents are now available for candidates to prepare their applications for the imminent Call for membership to existing ERNs.
Malta has designated the Mater Dei Hospital (MDH) as a National Coordination Hub for ERNs and MetabERN has been nominated by six associated national centres.
Wishing to become a member of the ERNS? The European Commission will launch in the coming weeks the first call for new members to join the existing 24 ERNs.
The Portuguese Association for CDG (APCDG) has developed 2 short surveys to assess the needs and solutions for future therapies among CDG Families and Professionals.
The Medical Executive Board met in Brussels with representatives of the Subnetworks, Work Packages and the Patient Board as well as the Coordinator and Vice-Coordinators.
Glycosylation is an essential biological process that adds structural and functional diversity to cells and molecules, participating in physiological processes such as immunity. The immune response is driven and modulated by protein-attached glycans that mediate cell-cell interactions, pathogen recognition and cell activation.
Following on from the first webinar on the transition from childhood to adulthood, Work Package 7, in collaboration with the SSIEM, has developed a second webinar on the transition from childhood to adulthood in Inherited Metabolic Disorders.
The presentations from our first and second webinar on the transition from childhood to adulthood, a MetabERN/SSIEM collaboration.
The new CPMS technical guide includes recommended browsers for best user experience, IP addresses to be whitelisted by Hospitals and bandwidth requirements.
The European patient organisation MPS Europe has asked people with MPS, their relatives and their physicians: What is your MPS Challenge?
Copyright ©2017-2019 all rights reserved