RARE2019 will follow on from the success of its predecessor, addressing the challenges of Rare Diseases Treatments as well as new therapies on the horizon. It will expand on so-called "generic topics", such as clinical trials' design, funding for research, digital health, big data on the one hand and focusing on the individual patients for innovation in both drug development and management.
Annual MetabERN Board meeting starting on Thursday 4 April (start time 14.00) to Saturday 6 April (finishing at 13.00).
The 2019 SSIEM NGS Course will take place at the University of Barcelona, Faculty of Medicine, 18th to 20th March 2019. The first day will start at 11:30h.
L’obiettivo degli incontri è condividere la nostra esperienza in materia di helpline - servizi di ascolto, informazione e orientamento per le malattie rare, e fornire alcuni strumenti per interpretare al meglio il ruolo di ascolto ed empatia richiesto da questo tipo di servizio da parte delle Associazioni.
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
The 12th International Conference on One Carbon Metabolism, B Vitamins, and Homocysteine is coming to Southern Catalonia, Spain. The programme has been designed to cover the interplay between the multidisciplinary aspects of research in advancing the field.
EULAR will offer a platform to facilitate interaction between physicians, scientists, patients of all ages and their families, health professionals and professionals representing the pharmaceutical industry, from across Europe and around the world.
This practical course is run by an experienced team of paediatricians, neonatologists, molecular biologists and biochemists specialised in metabolic medicine, who already contributed substantially to the understanding of metabolic disorders in childhood.
The Summer School Student Committee would like to invite medical students to apply for our Summer School on Paediatrics, from the 3rd - 12th of July 2019, in Groningen, The Netherlands.