Patient Organisations

Patient Representative Hanka Dekker Website [...]

Patient Representative  Lut De Baere Website [...]

Patient Representatives Giuliana Valerio Manuela Vaccarotto Website [...]

Patient Representative Marios Vakanas Website [...]

Patient representative: Jonathan Gibson Metabolic Support UK website [...]

Patient representative: Persephone Augoustides-Savvopoulou KRIKOS ZOIS [...]

Patient Representative Sylvia Sestini Website [...]

Patient Representative Beatriz Casado Verrier Website [...]

Patient Representative Tara Morrison Website [...]

Patient representative: Suzan Genova Nataliya Foundation [...]

Patient Representative Danny Miller Website [...]

Patient representative: Kelly Gilbert The Freya Foundation [...]

Patient Representative Anne Hugon Website [...]

Patient Representative Jenny Noble Website [...]

Patient Representative Marin Thiel Website [...]

Patient Representative Danielle Drachmann Website [...]

Patient representative: Angela Lombardi Sanfilippo Fighters website [...]

Patient Representative Alan Finglas Website [...]

Patient Representative Jenny Noble Website [...]

Patient Representative  Colin Brown Website [...]

Patient representative: Antonina Waszczuk Fundacja Sanfilippo website   [...]

Patient Representative Daniel Lewi Website [...]

Patient Representatives Tanya Collin-Histed Website [...]

Patient Representative Anna Meriluoto [...]

Patient Representative Sonja Hasemann Website [...]

Patient Representative Raquel Marques Website [...]

Patient representative: Krzysztof Kuschidlo Sanfilippo Initiative e.V. website   [...]

Patient Representative Michaela Dan Website [...]

Patient Representative Stefania Tobaldini Website [...]

Patient Representative Eduardo López Website [...]

Patient Representative Toni Mathieson Website [...]

Patient Representative Tomasz Grybek Website [...]

Patient Representative Anne Kalweit Website [...]

Patient Representative Karin Mossler Website [...]

Patient Representative Julia Boonnak Website [...]

Patient Representatives  Vanessa Ferreira Ana Verde Website [...]

Patient Representative Covadonga Diaz Martinez Website [...]

Patient Representative Alexander Niehaus Website [...]

Patient Representative Francisco Penarrubia Website [...]