Submission of Framework Partnership Agreement 2017-21 to CHAFEA
On June 21st, together with the MetabERN application, an application for a call for proposals conducted in the framework of the Third Programme for the Union’s action in the field of Health (2017-2021) was submitted. The Proposal aimed at providing financial support to ERNs, once established. Specifically support will be provided through the conclusion of framework partnership agreements (FPA) for a duration of maximum five years – covering the operating years 2017, 2018, 2019, 2020 and 2021 – and, subsequently, of specific grant agreements for the financial year 2017. The FPA will include a multi-annual work programme for the period 2017-2021 as an annex, including a budget plan. The evaluation committee lead by the Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) has awarded the MetabERN with a total score of 29/30 and we have been invited to submit a simplified grant application on January 27 with an annual work programme and budget.
MetabERN has been invited by Prof. Hans Lochmüller, University of Newcastle Upon Tyne, UK, Coordinator of RDConnect, to join a call for the Creation of the “RD Bridges Project “ within the framework of Horizon 2020 call and as a continuation of the RD Connect Project. The project proposal aims to facilitate interaction among the ERNs, and to establish a comprehensive, accessible infrastructure for shared data.The proposal has passed the first stage and the second stage and is resubmitted in March.
Marie Skłodowska Curie Actions
Marie Skłodowska Curie Actions, Research Fellowship Programme, are European programme for young scientists (inside the 4th year of PhD degree) or for PhD students. The deadline for submission was January 10th. The project MetabERN proposes aims to better understand the mechanistic basis of glycosaminoglycan (GAG) related disease and to use this knowledge for improved therapeutics. Since the project mainly involves LSDs, Ans van Der Ploeg and and Maurizio Scarpa will be the main contact people for this project.
3rd Public Health Programme
A call for applications for Rare diseases –in support of the setup of new registries is based on the Third Programme for the Union’s action in the field of Health (2014-2020) and its 2016 Work Programme. The objective of this call is to provide financial support to the development of 3-4 new registries on rare diseases based on existing registries in Member States. As laid down in Article 12 of the Directive on the application of patients’ rights in cross-border healthcare, registries will be one of the objectives of the European Reference Networks (ERNs) to be set up. The proposal for a united metabolic database was submitted by the group of Prof Stefan Kolker, Heidelberg, within the subnetwork “aminoacid and organic acid related disorders” on March 21st 2017.
EuroTRIMM_ European Training network for Inflammation, Mitochondria and Mood disorders
European Training network for Inflammation, Mitochondria and Mood disorders has submitted in January 2017 a H2020-MSCA-ITN-2017 proposal entitled: Interdisciplinary training network for the study of stress-related mood disorders (proposal ID: 766376). The overreaching aim of this proposal to increase understanding of the role of mitochondrial dysfunction in the etiology and biology of stress-related mood disorders, such as depression and anxiety. First round evaluation results are expected in June
- EuroTRIMM has five academic partners, Radboudumc, Nijmegen, The Netherlands (coordinator), École Polytechnique Fédérale de Lausanne, Lausanne, Switzerland, Max Planck Institute for Psychiatry, Munich, Germany, University of Pécs, Pécs, Hungary, UZ Leuven, Leuven, Belgium and one non-academic partner Amazentis, SA, Lausanne, Switzerland. Twelve highly integrated multidisciplinary projects will realize EuroTRIMM’s aim across Europe.
- MetabERN is also a full partner in EuroTRIMM, supporting partners in collecting scientific data. MetabERN will also be instrumental in disseminating results, and support contact with patient organizations and make information available for patients, as it is stated in their vision document.
Collaborative Network for European Clinical Trials For Children, (conect4children, c4c) within the 10th call of IMI2,
The first stage deadline for the call was 28 March 2017 – submission of a short proposal via the electronic submission system of the H2020 participant portal. The second state deadline will be 14 September 2017. You can find further information on the call here, here, here and here.
Call AIFA 2016 study protocol
The application was sent on 5 December 2016 by the MetabERN Italian group of HCPs entitled “Information Technology approach to explore the natural history, the impact of therapies and the cost of rare inherited metabolic disorders.”