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What is MetabERN ?
European Reference Networks (ERN) are networks connecting healthcare providers, health care professionals and patients across Europe. They aim to tackle complex or rare diseases and conditions which require highly specialised treatment and a pooling of knowledge and resources. 24 ERNs were launched in 2017, involving more than 900 highly specialised healthcare teams, located in more than 300 hospitals in 29 European countries.
MetabERN is one of the 24 ERNs that focuses on Inherited Metabolic Diseases. It is a network of specialised reference centres established by the EU to facilitate access to the best available care and address the needs across the border of all patients and their families affected by inherited metabolic rare diseases (IMDs).
MetabERN provides a platform for the exchange of best practices, the development of clinical guidelines, and the facilitation of cross-border healthcare for patients with rare metabolic diseases.
