Member Support

Clinical Patient Management System (CPMS)

The Clinical Patient Management System (CPMS) was launched by the European Commission (Directorate-General for Health and Food Safety – DG SANTE) on November 20th 2017, as a web-based application aimed at supporting the European Reference Networks (ERNs) in improving the diagnosis and treatment of rare or low prevalence complex diseases across national borders of EU Member States.

By providing tools for virtual consultations, the CPMS enables health professionals to enrol patients and share clinical information with other experts within and across ERNs, to carry out collaborative diagnosis and treatment in compliance with the General Data Protection Regulation (GDPR – 2016/679).

The system is also important for future clinical research, as, if the patients consent to it, the data can be entered in registries, and patients can be contacted for clinical trials.

• If you are an official ERN healthcare provider, you can request access by clicking the button below.
• If you desire personalised assistance with registering your account in the CPMS, please contact the Coordination Office of MetabERN to liaise with the platform’s coordinator here.

Watch the videos below to learn more about the platform:

ERN Collaborative Platform (ECP)

This collaborative platform is restricted to ERN users only.
It supports the ERN Board of Member States, the ERN Coordinators and ERN members in their online communication, document management and event organization.

THIS PLATFORM IS NOT FOR THE EXCHANGE OF PATIENT DATA (PERSONAL OR CLINICAL).