...Contact Numbers Koronavirus – stanovisko ČAVO CDG: ERKLÄRUNG ZUM COVID-19-AUSBRUCH MPS: https://mps-ev.de/aktuell/ PKU: https://www.facebook.com/digpku/ CDG: AVALDUS COVID-19 PUHANGU KOHTA AKU: aimAKU-DSAKU-metabERN-COVID19-statement CDG: STATEMENT ON COVID-19 OUTBREAK Ketotic Hypoglycemia: COVID-19 Guidelines...
MetabERN agrees and endorses the principles of the Manifesto for EU COVID-19 research when dealing with research results stemming from EU funded research grants related to COVID-19 on prevention (including...
Read our recent article “One year of COVID-19: infection rates and symptoms in patients with inherited metabolic diseases followed by MetabERN“, published in the Orphanet Journal of Rare Diseases. Citation:...
...that aim to support all rare IMD patients and caregivers during the COVID-19 emergency. COVID-19 Vaccine Recommendations The experts of MetabERN recommend that IMD patients get vaccinated against COVID-19 when...
The Associazione Italiana Anderson-Fabry (AIAF), amid the COVID-19 emergency, hosted a series of meetings in the frame of the project “AIAF IN CONNESSIONE”. During these meetings, participants – including patients,...
...of life of patients and issues that emerged during the COVID-19 outbreak. Visit AIAF Onlus – Associazione Italiana Anderson-Fabry Onlus Facebook page to follow the press event and watch the...
COVID-19 pandemic has been placing overwhelming pressure on national and international health care systems. This has also impacted patient empowerment in the field of rare diseases. What is this: The...
In the past 2 years, we had to move to virtual board meetings because of the Covid-19 pandemic restrictions, so meeting in Prague this month was very special after a...
...ERN Exchange Programme aims at harmonising specific knowledge within the ERNs and reducing gaps in expertise. The programme, which has suffered delay due to the COVID-19 pandemic, is now taking...
...emergency. It is expected to make a significant contribution to the post-COVID-19 recovery and to the long-term health challenges by building stronger, more resilient and more accessible health systems. Each...
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