I love someone rare, one of my twin daughters Natalia. I know how hard is it to be involved into this new way of living and to accept the rare disease. I want to help people to get this easily, to be happy and to handle with new challenges that come with the Rare Disease. I am an accountant but currently I am a personal care assistant of Natalia Genova with Isovaleric Аcidemia, rare diseases Helpline operator in Bulgaria, ePAG advocate and a SPOC for the AOA Subnetwork at MetabERN.
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