Chairman
Natalia Foundation
Name and Surname: | Suzan Genova |
Country: | Bulgaria |
Contact detail: | suzan . m . genova @ gmail . com |
Association Name: | Natalia Foundation |
Disease-related field: | Isovaleric Acidemia (IVA) |
Role within the association: | Chairman |
Short bio: | I love someone rare, one of my twin daughters Natalia. I know how hard it is to be involved into this new way of living and to accept the rare disease. I want to help people to get this easily, to be happy and to handle with new challenges that come with the Rare Disease. I am an accountant but currently I am a QA Specialist at ZaUtre, Chairman at Natalia Foundation and an ePAG advocate and a SPOC for the AOA Subnetwork at MetabERN. |