I love someone rare, one of my twin daughters Natalia. I know how hard it is to be involved into this new way of living and to accept the rare disease. I want to help people to get this easily, to be happy and to handle with new challenges that come with the Rare Disease. I am an accountant but currently I am a QA Specialist at ZaUtre, Chairman at Natalia Foundation and an ePAG advocate and a SPOC for the AOA Subnetwork at MetabERN.
To provide the best possible service, we use technical, statistical and third-party cookies on this site. Continuing the navigation you consent to use them. AcceptRejectRead More
Privacy & Cookies Policy
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.