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PRECEPTORSHIP PROGRAMME ON TREATABLE LYSOSOMAL STORAGE DISEASES (LSDS) – MANAGEMENT AND TREATMENT- SALZBURG, 29TH OF JUNE – 1ST OF JULY 2020

PRECEPTORSHIP PROGRAMME ON TREATABLE LYSOSOMAL STORAGE DISEASES (LSDS) – MANAGEMENT AND TREATMENT- SALZBURG, 29TH OF JUNE – 1ST OF JULY 2020
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MetabERN, as part of the capacity building and training activities, in collaboration with the Clinical Research Center in Salzburg and the Brains for Brain Foundation, has organized a PRECEPTORSHIP PROGRAMME ON TREATABLE LYSOSOMAL STORAGE DISEASES (LSDs) – MANAGEMENT AND TREATMENT that will take place at the Salzburg Medical Simulation Center on 29th -30th of June – 1st of July 2020

The course will host about 24 physicians from different countries who will share experiences and being updated on the recent developments in MPS. The meeting will also provide a comprehensive global forum for experts and participants to exchange ideas and present results on all aspects of MPSs.

For more details please see the complete programme.

Objective – The overall objective of the course is to train professionals with a scientific background and an interest on Lysosomal Storage Diseases, in particular, Mucopolysaccharidoses (MPSs) and to provide them with theoretical expert knowledge and practical experience in both the recognition of these diseases and related management. The practical experience in management and treatment of MPSs will be gained through the use of patient case studies that the participants will work on throughout the course and in parallel with new topics being added to their theoretical knowledge base.

 Expected results – The main expected results of this program consist in ensuring safe and effective initiation of therapies in patients from countries where there is no experience of administration; decreasing the possibility of severe adverse events during treatment and helping patients to receive a state of the art follow up.

 Learning outcomes – At the end of the course, participants will be able to discuss a multidisciplinary approach for the management and treatment of these complex disorders assuring an adequate follow up of patients by evaluating the status of the disease.

Participants: The participants, a limited number of max 24 physicians (3 physicians each scenario, by bringing in each scenario 1 junior, 1 senior and one specialist), should be fluent in English and experienced in the management of these patients and providing ERT. Participants are required to attend for the entire length of the preceptorship.

Registration: Please contact Ms Andrea Lughofer (a.lughofer@crcs.at) if you’re interested – you’ll get a link and login data for registration on www.crcs.at

All candidates will be evaluated according to the skills, qualifications, experience and professional interest considered necessary to complete the preceptorship.

IMPORTANT: Please note that participant fee and travel expenses (hotel room, train and flight economy class up to 500 Euro roundtrip) are covered and will be booked by CRCS GmbH. This preceptorship will be made possible by an unrestricted grant by Sanofi Genzyme.

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Disclaimer

MetabERN is a European Reference Network (ERN) approved by the ERN Board of Member States.
The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

For more information please contact
Prof. Maurizio Scarpa, MD, PhD
MetabERN Coordinator

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