2nd Low Protein Diet Course | 29 March 2019
A collaborative workshop at Hospital 12 de Octubre Madrid sharing practical guidance and recipes for managing low protein diets.
2nd Low Protein Diet Course | 29 March 2019 Read More »
Past Event
MetabERN Survey – Patients’ Perspective of Clinical Trials
A comprehensive questionnaire gathering patient perspectives on clinical trials across the European rare metabolic disease network.
MetabERN Survey – Patients’ Perspective of Clinical Trials Read More »
Rare Disease Day 2019 | 28 February 2019
Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point Rare Disease Day in their life.
Rare Disease Day 2019 | 28 February 2019 Read More »
CPMS 17.0 Webinar | 19th February 2019 – 14:00 CET
A February 19 training session introducing the new Clinical Patient Management System 17.0 features for all ERN network members.
CPMS 17.0 Webinar | 19th February 2019 – 14:00 CET Read More »
15th Annual WORLDSymposium | 4-8 February 2019
The February 4-8 annual symposium in Orlando brings together global experts to discuss latest advances in lysosomal disease research.
15th Annual WORLDSymposium | 4-8 February 2019 Read More »
3rd International Homocystinurias Meeting | 28 February – 1 March 2019
3rd International Homocystinurias Patient-Expert Meeting on Thursday 28th February – Friday 1st March 2019 in Rome, Italy.
3rd International Homocystinurias Meeting | 28 February – 1 March 2019 Read More »
RARE2019, 4-5 March 2019 | Vienna, Austria
A Vienna congress uniting global rare disease experts to discuss treatment advances, clinical trials and patient-focused innovation.
RARE2019, 4-5 March 2019 | Vienna, Austria Read More »
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt
Annual MetabERN Board meeting starting on Thursday 4 April (start time 14.00) to Saturday 6 April (finishing at 13.00).Â
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt Read More »
SSIEM NGS Course | 18-20 March 2019
The 2019 SSIEM NGS Course will take place at the University of Barcelona, Faculty of Medicine, 18th to 20th March 2019. The first day will start at 11:30h.
SSIEM NGS Course | 18-20 March 2019 Read More »
NS2 – “New Challenges, New Services” | April 5-6 2019
L’obiettivo degli incontri è condividere la nostra esperienza in materia di helpline – servizi di ascolto, informazione e orientamento per le malattie rare, e fornire alcuni strumenti per interpretare al meglio il ruolo di ascolto ed empatia richiesto da questo tipo di servizio da parte delle Associazioni.
NS2 – “New Challenges, New Services” | April 5-6 2019 Read More »
SSIEM ACADEMY COURSE | 29 – 30 April 2019
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
SSIEM ACADEMY COURSE | 29 – 30 April 2019 Read More »
7th Fabry Expert Meeting | 21/22 – 26 May 2019
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
