Rare Disease Day 2018
The 2018 edition of Rare Disease Day united communities worldwide to raise awareness and support for people living with rare conditions.
Rare Disease Day 2018 Read More »
Past Event
9th Annual SBP Rare Disease Symposium & CDG Family Conference
The 2018 SBP Rare Disease Symposium and CDG Family Conference showcased international collaboration in CDG research and patient support.
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Third international meeting of the Scandinavian Association for Glycogen Storage Disease
Healthcare experts and patient representatives gathered to address key challenges in Glycogen Storage Disease management and research.
The 3rd World Conference on CDG for families and professionals
The 3rd World Conference on CDG brought together 51 families and 73 professionals to advance understanding and treatment worldwide.
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