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Affiliated Partners

call for applications for Affiliated Partner within the European Reference Networks

News, Networks, Other

The European Commission has launched the 2026 Call for Applications for Affiliated Partners within the European Reference Networks (ERNs). The call is designed to strengthen cross-border collaboration and improve access to highly specialised care for patients with rare, low-prevalence and complex diseases. Applications will be accepted from 13 April 2026 until 1 September 2026, 23:59 CET.  Why this call matters ERNs bring together European hospital […]

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Patients rights on cross border healthcare and the European Reference Networks

high-level conference: Patients’ rights on cross-border healthcare and the European Reference Networks

Events, Networks, News, News for Patients

The hybrid high-level conference on “Patients’ rights on cross-border healthcare and the European Reference Networks” will take place on 26 March 2026. This high-level conference will focus on the EU’s achievements in making cross-border healthcare more accessible, as well as at the barriers to making it more widely known and used.  The European Commissioner for Health

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Survey

SIMMESN & MetabERN Collaborative Success: Survey Results on Diagnostic and Monitoring Activities for Patients with Metabolic Disorders are Available

News, Events, Networks, News for Patients

We are proud to share the results from a crucial survey on diagnostic and monitoring activities for patients with metabolic disorders, a collaborative effort between Società Italiana per lo Studio delle Malattie Metaboliche Ereditarie e lo Screening Neonatale (SIMMESN) and MetabERN Italy, led by Prof Carlo Dionisi Vici (Bambino Gesù Children Hospital, Rome, Italy). This initiative

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Essential biomarkers in IEM basic course

Essential biomarkers in IEM: basic course

News, Education, Education for Professionals

Enrol in the online course “Essential biomarkers in IEM: basic course” provided by the SJD Education of the Sant Joan de Déu University Hospital in Barcelona, starting on 11 March 2026. The course is delivered as a series of six focused webinars, each centred on a key biochemical presentation. These sessions bring together leading international experts in

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Galactosemia

“The Classical Galactosemia European Care Pathway” is now available

Resources, Networks, News

MetabERN is pleased to inform you that “The Classical Galactosemia European Care Pathway” is now available. This initiative was spearheaded by Mrs Maaike van Kempen, Mrs Clementine Bry, Prof. Estela Rubio-Gozalbo, Prof. Eileen Treacy, and Prof. Annet Bosch in collaboration with JARDIN Joint Action. The pathway is built upon the International Clinical Guideline for the Management of

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