The MetabERN Exchange Programme, launched in late 2025, supports short-term mobility visits for young healthcare professionals at MetabERN member centres across various European countries. Building on the success of the previous programme, this new initiative aims to advance the sharing of expertise and foster collaboration between member centres, and enhance clinical and research expertise among […]
The MetabERN Exchange Programme is here! Read More »
On the occasion of Fabry Awareness Month, in April, the Antwerp University Hospital (UZA) and MetabERN will host a Fabry Disease Day event on 28 March 2026 in the Maison de la Poste, Brussels, Belgium. International experts, including Dr. Uma Ramaswami (Royal Free Hospital), Dr. Guy Hans (Antwerp University Hospital), and Dr. Valentine Gillion (Cliniques universitaires
MetabERN Fabry Disease Day Read More »
Last week, the High-Level Meeting on a European Innovation and Care Ecosystem for Rare Diseases (HLM Rare 2025) hosted in Brussels, from 9-11 December 2025, by the European Reference Networks, MEP Vytenis Andriukaitis (S&D, Lithuania) and Prof. Maurizio Scarpa (President of the Brains for Brain Foundation and MetabERN Coordinator), marked a landmark moment for the 30
Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases Read More »
The “Brain Metabolism Dialogues” webinar series is back! The upcoming webinar, which will take place on Monday, 15 December 2025, at 5 p.m. CET, will focus on a specific cell trafficking biological function, autophagy. This session will offer an integrated view of autophagy, a fundamental cellular recycling process, and its crucial relationship with brain metabolism.
Autophagy in Brain Metabolism Webinar Read More »
We are excited to announce the High-Level Meeting (HLM RARE) focused on strengthening the European research and innovation ecosystem for rare diseases. This important initiative will take place in Brussels from December 9-11, 2025. HLM RARE is led by the Brains for Brain Foundation (B4B) under the presidency of Prof. Maurizio Scarpa, working in close
High-Level Meeting on the European Research and Innovation Ecosystem for Rare Diseases Read More »
The MetabERN Annual Board Meeting 2025 is scheduled for 6 – 8 November in the beautiful city of Copenhagen, Denmark. Building on the success of last year’s meeting in Budapest, the Annual Board Meeting 2025 promises to be an insightful and highly engaging scientific event for our network. It will feature inspiring talks and highlights of our
MetabERN Annual Board Meeting 2025 is approaching Read More »
What happens when your body is under siege, but the world can’t see the battle?Living with Mitochondrial Encephalomyopathy with Lactic Acidosis and Stroke-like episodes (MELAS) syndrome means navigating a rare, often invisible disease that reshapes every aspect of life. This Global Mental Health Day (October 10), we’re honored to share a patient’s story in a
Rare disease, chronic pain and mental health: a patient’s story Read More »
September shines a light on Mitochondrial Disease Awareness and Pain Awareness Month. Mitochondrial diseases impact around 1 in 5,000 individuals and often remain underdiagnosed and misunderstood. In recognition of Mitochondrial Disease Awareness Week (September 15–21) and Pain Awareness Month, we celebrate resilience by sharing an inspiring patient story alongside an expert-led presentation focused on chronic
Chronic Pain and Mitochondrial Disease: Nanda’s Story and Expert Insights Read More »
The 14th International Network for Undiagnosed Diseases (UDNI) Conference will take place from 28 to 31 October 2025 in Rio de Janeiro, Brazil. The International Network for Undiagnosed Diseases (UDNI) was established in 2014 as a collaborative initiative spanning multiple countries. Its primary mission is to improve diagnostic rates for individuals living with undiagnosed conditions.
14th International Network for Undiagnosed Diseases (UDNI) Conference Read More »
The “Brain Metabolism Dialogues” webinar series is back! The upcoming webinar on Brain Energy Metabolism will take place on Monday 30 June at 17.00 CEST. Dr Luis Felipe Barros Olmedo from Universidad San Sebastian Valdivia, Chile will be the main speaker in our upcoming session. Following his presentation, an engaging panel discussion will ensue, designed to foster
Brain Energy Metabolism Dialogue Read More »
As we wrap up Fabry Disease Awareness Month, the Antwerp University Hospital UZA, in collaboration with MetabERN, is excited to offer two free video lectures focused on recognizing Fabry disease in cardiology. These sessions are designed to empower cardiologists, general practitioners, internists, and specialists in metabolic diseases with the latest insights and knowledge from leading
Recognising Fabry Disease in Cardiology Read More »
Join the Rare Neurotransmitter Diseases (RND) Researchers Forum which will take place on May 16, 2025, in Zagreb, Croatia, under the theme: “Connecting the Network: From Basic Research and Clinical Phenotypes to Patient Voice.” The aim of this event is to contribute to knowledge exchange on research advancements, diagnostic tools, and treatment modalities and provide
Rare Neurotransmitter Diseases (RND) Researchers Forum Read More »
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