The HLM Rare 2025 launched a Declaration setting strategic priorities for rare disease research and innovation in Europe.
Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases Read More »
A webinar on autophagy and brain metabolism, part of the Brain Metabolism Dialogues series. Keynote by Prof. Antonio Zorzano.
Autophagy in Brain Metabolism Webinar Read More »
The European Reference Network on Hereditary Metabolic Disorders (MetabERN) held its 9th annual board meeting in Copenhagen from 6 to 8 November 2025, with over 90 participants attending in person and online. Representatives from member centres, partner patient organisations, and the coordination team discussed the network’s achievements, ongoing projects, and future plans. The three-day meeting covered
HLM Rare 2025 takes place in Brussels from 9-11 December. A high-level initiative on rare disease research and innovation in Europe.
High-Level Meeting on the European Research and Innovation Ecosystem for Rare Diseases Read More »
The MetabERN Annual Board Meeting 2025 takes place in Copenhagen on 6-8 November. A three-day event featuring scientific talks and collaborative discussions.
MetabERN Annual Board Meeting 2025 is approaching Read More »
The UDNI Conference 2025 takes place in Rio de Janeiro from 28 to 31 October. A global forum on diagnosis for rare disease patients.
14th International Network for Undiagnosed Diseases (UDNI) Conference Read More »
The Brain Metabolism Dialogues webinar on brain energy metabolism with Dr Luis Felipe Barros Olmedo and expert panellists on 30 June 2025.
Brain Energy Metabolism Dialogue Read More »
Free video lectures by UZA and MetabERN on recognising Fabry disease in cardiology, covering genetic aspects and clinical red flags for cardiologists.
Recognising Fabry Disease in Cardiology Read More »
A forum on rare neurotransmitter diseases in Zagreb on 16 May 2025, bringing together researchers, clinicians, patients and caregivers.
Rare Neurotransmitter Diseases (RND) Researchers Forum Read More »
A conference on drug repurposing featuring AI, clinical trial design and patient access, held in Amsterdam on 7–8 May 2025.
International Drug Repurposing Conference – iDR25 Read More »
A high-level conference on EU rare diseases policy held in Warsaw on 10 April 2025 under the Polish Presidency of the EU Council.
‘Towards an EU action plan on rare diseases’ Conference Read More »
A webinar on Tyrosinemia Type 1 from a neurometabolic perspective, organised by the MetabERN AOA Subnetwork on 27 May 2025.
Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork Read More »
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