Autophagy in Brain Metabolism Webinar
A webinar on autophagy and brain metabolism, part of the Brain Metabolism Dialogues series. Keynote by Prof. Antonio Zorzano.
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News
High-Level Meeting on the European Research and Innovation Ecosystem for Rare Diseases
HLM Rare 2025 takes place in Brussels from 9-11 December. A high-level initiative on rare disease research and innovation in Europe.
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MetabERN Annual Board Meeting 2025 is approaching
The MetabERN Annual Board Meeting 2025 takes place in Copenhagen on 6-8 November. A three-day event featuring scientific talks and collaborative discussions.
MetabERN Annual Board Meeting 2025 is approaching Read More »
14th International Network for Undiagnosed Diseases (UDNI) Conference
The UDNI Conference 2025 takes place in Rio de Janeiro from 28 to 31 October. A global forum on diagnosis for rare disease patients.
14th International Network for Undiagnosed Diseases (UDNI) Conference Read More »
Brain Energy Metabolism Dialogue
The Brain Metabolism Dialogues webinar on brain energy metabolism with Dr Luis Felipe Barros Olmedo and expert panellists on 30 June 2025.
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Recognising Fabry Disease in Cardiology
Free video lectures by UZA and MetabERN on recognising Fabry disease in cardiology, covering genetic aspects and clinical red flags for cardiologists.
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Rare Neurotransmitter Diseases (RND) Researchers Forum
A forum on rare neurotransmitter diseases in Zagreb on 16 May 2025, bringing together researchers, clinicians, patients and caregivers.
Rare Neurotransmitter Diseases (RND) Researchers Forum Read More »
International Drug Repurposing Conference – iDR25
A conference on drug repurposing featuring AI, clinical trial design and patient access, held in Amsterdam on 7–8 May 2025.
International Drug Repurposing Conference – iDR25 Read More »
‘Towards an EU action plan on rare diseases’ Conference
A high-level conference on EU rare diseases policy held in Warsaw on 10 April 2025 under the Polish Presidency of the EU Council.
‘Towards an EU action plan on rare diseases’ Conference Read More »
Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork
A webinar on Tyrosinemia Type 1 from a neurometabolic perspective, organised by the MetabERN AOA Subnetwork on 27 May 2025.
Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork Read More »
Building a Research and Innovation Ecosystem for Rare Diseases
A European Parliament hearing on building a research and innovation ecosystem for rare diseases, organised by Brains4Brain Foundation on 29 April 2025.
Building a Research and Innovation Ecosystem for Rare Diseases Read More »
European Parliament Consultation on Rare Diseases
A public consultation by the European Parliament’s SANT Committee to gather insights on rare disease challenges, open until 31 March 2025.
European Parliament Consultation on Rare Diseases Read More »
