An online meeting on DCDEs curation for clinicians and medical professionals will take place on 9 December 2021 at 16:00 CET.
EJP RD & ERICA meeting – Domain specific Common Data Elements (DCDEs) Curation Read More »
An Italian online event on 30 Nov 2021 will explore the role of ERNs in rare disease care, research, and patient involvement.
“ERNs towards integration” – Online Italian event for the ERN community Read More »
The 11th SIMMESN Congress will be held in Bologna from 2 to 4 Dec 2021, focusing on metabolic diseases and newborn screening.
A webinar on 9 Nov will explore drug development and collaboration with Rare Disease networks to improve patient care.
Drug development and how best to work with specialised Rare Disease networks – webinar Read More »
A Slovenian Presidency event on 11 Oct 2021 will explore equity and innovation in newborn and FH paediatric screening across Europe.
The 17th International Symposium of the Portuguese Society for Metabolic Disorders (SPDM), will take place the 9th-10th of September 2021.
17th International Symposium of the SPDM | 8-10 September Read More »
The 5th International Symposium on UCD will take place as a virtual satellite to the International Congress on Inborn Errors of Metabolism (ICIEM).
5th International Symposium on UCD | 22-24 September 2021 Read More »
The 4th International Conference On Pediatric Liver Disease, with specific discussions on liver transplantation in metabolic diseases.
4th International Conference on Pediatric Liver Disease Read More »
A virtual symposium on Congenital Disorders of Glycosylation (CDG) will be held on 23-24 June 2021. Abstract submission is open.
International Scientific CDG Symposium 2021 (Virtual) Read More »
Rare Disease Day Verona | A weekend programme, planned by AISMME, starting with a webinar on February 26th at 17:30 to 19:00.
Rare Disease Day Verona | Weekend Programme Read More »
Rare Disease Day webinar presented by Freiburg Centre for Rare Diseases on 26th February 2021 from 15:00 – 17:15.
Rare Disease Day Freiburg | Webinar | 26 February 2021 Read More »
An EJP RD webinar on 2 Feb 2021 will present the Joint Transnational Call on rare disease research. Registration closes 29 Jan.
Information Webinar | February 2nd, 2021 Read More »
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