CPMS | NEWSLETTER | ERN
HealthFlex
×
  • Home
  • The Network
    • Who We Are
    • Our Vision, Mission & Aim
    • Structure & Governance
    • Specialised Centres
    • Coordinators
    • Stakeholders & Supporters
    • Informative Materials
  • For Patients
    • Patient Board
    • Find a specialist centre
    • Patient Organisations
    • Patient Resources
    • Cross-border Healthcare
  • Expertise
    • Evaluation
    • Education Programme
    • Guidelines
    • UIMD Registry
    • Subnetworks
    • Work Packages
    • Transversal Activities
    • CPMS Support
    • Resources
  • News & Events
    • News
    • Events
  • Activities
    • Projects
    • Publications
  • Contact Us

6th World Conference on CDG – 21-23 July 2023

6th World Conference on CDG – 21-23 July 2023
EventsNetworksNewsNews for Patients

The 6th World Conference on CDG, organised by the World Congenital Disorders of Glycosylation Organization (WCDGO), will take place on 21-23 July 2023 at the NOVA School of Science and Technology, FCT NOVA in Portugal. It will be the largest, ever global gathering of People Living with CDG (PLwCDG), caregivers, healthcare professionals, and the pharmaceutical industry. It is the most complete and resourceful international conference focused entirely on Congenital Disorders of Glycosylation (CDG). The content is delivered in a patient-friendly language that non-specialist audiences can understand. The ultimate goal is to help people to engage with clinicians and researchers more effectively and participate actively in their healthcare decisions.

Families and professionals will share their perspectives, experiences, and best practices in every session. The majority of sessions address all CDGs, although, in many cases, the knowledge of one CDG type may be of help to many other types.

Registrations for the 2023 World Conference on CDG is now open until 30 April 2023. Register now!

Search

Last News & Events

  • Liver Transplant for Inborn Errors of Metabolism – Sharing Knowledge Across ERNs
  • 6th World Conference on CDG – 21-23 July 2023
  • Gyrate Atrophy of the Choroid and Retina – International hybrid symposium
  • 2023 CTX International Scientific Meeting in Jerusalem
  • Postgraduate Course on Lysosomal Storage Disorders in Nierstein
  • EVALUATING THE DIRECT AND INDIRECT COSTS OF FABRY DISEASE IN ITALY
  • EJP RD workshop – The Blood-Brain Barrier: current research and novel therapeutic crossing approaches
  • Patient representatives for Smith-Lemli-Opitz syndrome are looking for European families

Activities

  • Publications and Guidelines
  • Unified Registry for Inherited Metabolic Disorders
  • Projects

Disclaimer

MetabERN is a European Reference Network (ERN) approved by the ERN Board of Member States.
The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

For more information please contact
Prof. Maurizio Scarpa, MD, PhD
MetabERN Coordinator

Newsletter

Sign up to the MetabERN newsletter

Follow us on Twitter

Tweets by @Metab_ERN

Search the website


Copyright ©2017-2021 all rights reserved
Previous Content

Web by EFFIGE 2.0
To provide the best possible service, we use technical, statistical and third-party cookies on this site. Continuing the navigation you consent to use them. Accept Reject Read More
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT