A landmark national meeting in Udine addresses the growing challenges of managing inherited metabolic diseases in the adult population.
First Italian National Meeting on Rare Inherited Metabolic Diseases in Adults Read More »
Medical experts gather in Buenos Aires to discuss treatment advances and management strategies for inherited neurometabolic disorders.
Brussels hosts the third Innovation Bootcamp exploring key challenges in rare disease diagnosis, treatment and drug development.
Innovation Bootcamp in Rare Diseases (IBRD2022) congress Read More »
June 28 marks the International Neonatal Screening Day, promoting early detection and treatment of rare conditions in newborns.
International Neonatal Screening Day Read More »
The SSIEM Annual Symposium 2022 will focus on metabolism and genetics, fostering discussions and networking in Freiburg from 30 August to 2 September.
SSIEM Annual Symposium 2022 Read More »
Recordati Rare Diseases announces two specialized training courses for healthcare professionals on inherited metabolic disease management.
Recordati Rare Diseases – Training courses on inherited metabolic diseases Read More »
A GLI webinar explored challenges in diagnosing and treating rare paediatric liver diseases, their impact on families, and recent scientific advances.
Rare Liver Diseases in Europe – Recent Webinar by GLI Read More »
A workshop on endocrine cancer for ERN specialists will take place on 4 May 2022 in Gliwice, Poland. Free participation and travel support.
EJP RD WORKSHOP – Endocrine cancer: A challenge in adults and children Read More »
An online meeting on DCDEs curation for clinicians and medical professionals will take place on 9 December 2021 at 16:00 CET.
EJP RD & ERICA meeting – Domain specific Common Data Elements (DCDEs) Curation Read More »
An Italian online event on 30 Nov 2021 will explore the role of ERNs in rare disease care, research, and patient involvement.
“ERNs towards integration” – Online Italian event for the ERN community Read More »
The 11th SIMMESN Congress will be held in Bologna from 2 to 4 Dec 2021, focusing on metabolic diseases and newborn screening.
A webinar on 9 Nov will explore drug development and collaboration with Rare Disease networks to improve patient care.
Drug development and how best to work with specialised Rare Disease networks – webinar Read More »
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