Registration is now open for the “Genetic therapies” course promoted by Recordati Rare Disease Fondation d’Entreprise, which will be held in person from 22 to 24 June 2023, in Heidelberg (Germany). The course will provide valuable insights into the rapidly evolving field of genetic therapies and their application in rare diseases, mainly inherited metabolic diseases. […]
“Genetic therapies” course in Heidelberg – 22-24 June Read More »
We are delighted to announce the Cross ERN Workshop (MetabERN – ERN TransplantChild – ERN RARE-LIVER) which will be held in Coimbra, Portugal on 8 to 9 June 2023. The workshop is aimed at paediatric, adult physicians, patient associations and patient advocacy organizations from three European Reference Networks and is supported by the EJP RD Support scheme for Networking
Liver Transplant for Inborn Errors of Metabolism – Sharing Knowledge Across ERNs Read More »
Global experts and families gather in Portugal to discuss advances in Congenital Disorders of Glycosylation treatment and care.
6th World Conference on CDG – 21-23 July 2023 Read More »
Amsterdam UMC hosts a hybrid symposium on gyrate atrophy, bringing together experts and families for research updates and discussion.
Gyrate Atrophy of the Choroid and Retina – International hybrid symposium Read More »
International experts gather in Jerusalem to advance research and clinical collaborations in Cerebrotendinous Xanthomatosis.
2023 CTX International Scientific Meeting in Jerusalem Read More »
Young healthcare professionals can enhance their knowledge of rare metabolic diseases at this interactive course in Nierstein, Germany.
Postgraduate Course on Lysosomal Storage Disorders in Nierstein Read More »
Padua University hosts a scientific workshop exploring blood-brain barrier research and novel therapeutic strategies in rare diseases.
Two key events under the Czech EU Presidency address newborn screening and policy framework development for rare disease management.
Rare Diseases events under the Czech EU Council Presidency Read More »
The MetabERN Board reunites in Prague for its first face-to-face meeting since the pandemic, discussing key developments in rare diseases.
MetabERN Board meeting in Prague, 13-15 October 2022 Read More »
A landmark national meeting in Udine addresses the growing challenges of managing inherited metabolic diseases in the adult population.
First Italian National Meeting on Rare Inherited Metabolic Diseases in Adults Read More »
Medical experts gather in Buenos Aires to discuss treatment advances and management strategies for inherited neurometabolic disorders.
Brussels hosts the third Innovation Bootcamp exploring key challenges in rare disease diagnosis, treatment and drug development.
Innovation Bootcamp in Rare Diseases (IBRD2022) congress Read More »
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