International Drug Repurposing Conference – iDR25
A conference on drug repurposing featuring AI, clinical trial design and patient access, held in Amsterdam on 7–8 May 2025.
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Events
Emergencies in Neurometabolic Disorders and possible differential diagnosis
A hybrid course on neurometabolic emergencies and differential diagnosis hosted by Sant Joan de Déu Hospital on 3–4 July 2025.
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22nd Postgraduate Course on Lysosomal Storage Disorders
A postgraduate course on lysosomal storage disorders organised by the University Medical Center Mainz in Nierstein, Germany on 11–14 June 2025.
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‘Towards an EU action plan on rare diseases’ Conference
A high-level conference on EU rare diseases policy held in Warsaw on 10 April 2025 under the Polish Presidency of the EU Council.
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Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork
A webinar on Tyrosinemia Type 1 from a neurometabolic perspective, organised by the MetabERN AOA Subnetwork on 27 May 2025.
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Building a Research and Innovation Ecosystem for Rare Diseases
A European Parliament hearing on building a research and innovation ecosystem for rare diseases, organised by Brains4Brain Foundation on 29 April 2025.
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Dialogue Between Physics and Metabolism in Brain Functions
A webinar exploring how physical processes regulate brain metabolism and their relevance to inherited metabolic disorders, on 24 March 2025.
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Brain Metabolism Dialogues – webinar series
A joint MetabERN and SSIEM webinar series bridging clinical neurology and basic scientific research in brain metabolism.
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Online Webinar “Think Ammonia”
A webinar raising awareness on hyperammonemia, organised by Krikos Zois and Metabolic Support UK with MetabERN endorsement.
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#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle
A Rare Disease Day event held at Udine Castle on 11 February 2025, organised by UNIAMO in collaboration with MetabERN.
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SanFilippo Webinar – Urgencies & Pain Management
A webinar on emergency care and pain management for Sanfilippo Syndrome patients, hosted by Sanfilippo Fighters and MetabERN.
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ERICA ERN Research Conference hosted by MetabERN
The ERICA ERN Research Conference, hosted by MetabERN in Udine from 11 to 13 December 2024, gathered 178 participants from all 24 ERNs.
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