Events

YPA Webinar 1

Webinar: Young Patient Advocacy – A Call to Action for Transition!

Events, Education, Education for Patients, Education for Professionals

MetabERN in collaboration with the Greek patient organization, Krikos Zois, will be hosting a webinar on Young Patient Advocacy and Transition on 19 March at 17:00 Central European Time (CET). This session as part of the Patient Therapeutic Education Programme (PTEP) is designed for patients, patient representatives and healthcare professionals involved in the study and care of […]

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Hypoglycemia

Webinar – Childhood hypoglycemia: from International Recommendations to clinical practice

Education, Education for Professionals, Events

This session is scheduled for March 5th at 16:00 CET and focuses on presenting the International Recommendations on the evaluation and management of persistent hypoglycemia in neonates, infants, and children. As part of a national inter-ERN collaboration, this webinar will also be aimed primarily at the Italian MetabERN and Endo-ERN centers. The session will be held

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Board

MetabERN Annual Board meeting 2025 – Highlights from a highly valuable scientific event in Copenhagen

Events, Networks, News, Past Event

The European Reference Network on Hereditary Metabolic Disorders (MetabERN) held its 9th annual board meeting in Copenhagen from 6 to 8 November 2025, with over 90 participants attending in person and online. Representatives from member centres, partner patient organisations, and the coordination team discussed the network’s achievements, ongoing projects, and future plans. The three-day meeting covered

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