European Working Group on Gaucher Disease Webinar | Laboratory Diagnostics of Gaucher Disease - 11 Dec 2019 from 17:00-18:00 CET
Patients and specialists of Anderson-Fabry disease will meet in Florence on March 28th-29th, for the Annual Italian Meeting organized by AIAF Onlus.
On October 24, at 14:00 (CET), there will be a CPMS Webinar on the upcoming changes. Be sure not to miss it. Click on the article to get more details.
The misdiagnosis of metabolic diseases' webinars are free, and a certificate of attendance will be provided by the for those who attend all sessions.
The International Course Training on strategies to foster solutions of undiagnosed rare disease cases is part of a series of training activities.
The Portuguese Association for CDG (APCDG) has developed 2 short surveys to assess the needs and solutions for future therapies among CDG Families and Professionals.
Following on from the first webinar on the transition from childhood to adulthood, Work Package 7, in collaboration with the SSIEM, has developed a second webinar on the transition from childhood to adulthood in Inherited Metabolic Disorders.
The 2nd Course on Low Protein diet for Metabolic Patients will took place on 29th March 2019 at Hospital 12 de Octubre, in Madrid. El 29 de Marzo de 2019 tendrá lugar en el Hospital 12 de Octubre, en Madrid, el Segundo Taller de Dieta Hipoproteica para Pacientes Metabólicos.
To improve the realisation of clinical trials within the network, and adequately adapt the protocols to patients' expectations, MetabERN wishes to understand your perception of clinical trials.