Brain Energy Metabolism Dialogue
The Brain Metabolism Dialogues webinar on brain energy metabolism with Dr Luis Felipe Barros Olmedo and expert panellists on 30 June 2025.
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One-Day International CTX Workshop Series
A one-day workshop on cerebrotendinous xanthomatosis (CTX) hosted by the CTX Alliance in Kyoto, Japan on 1 September 2025.
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2nd Symposium – Connection Between Physics and Metabolism in Brain Functions
An interdisciplinary symposium exploring the connection between physics and metabolism in brain functions, held in Paris on 7 November 2025.
2nd Symposium – Connection Between Physics and Metabolism in Brain Functions Read More »
Recognising Fabry Disease in Cardiology
Free video lectures by UZA and MetabERN on recognising Fabry disease in cardiology, covering genetic aspects and clinical red flags for cardiologists.
Recognising Fabry Disease in Cardiology Read More »
Rare Neurotransmitter Diseases (RND) Researchers Forum
A forum on rare neurotransmitter diseases in Zagreb on 16 May 2025, bringing together researchers, clinicians, patients and caregivers.
Rare Neurotransmitter Diseases (RND) Researchers Forum Read More »
International Drug Repurposing Conference – iDR25
A conference on drug repurposing featuring AI, clinical trial design and patient access, held in Amsterdam on 7–8 May 2025.
International Drug Repurposing Conference – iDR25 Read More »
Emergencies in Neurometabolic Disorders and possible differential diagnosis
A hybrid course on neurometabolic emergencies and differential diagnosis hosted by Sant Joan de Déu Hospital on 3–4 July 2025.
Emergencies in Neurometabolic Disorders and possible differential diagnosis Read More »
22nd Postgraduate Course on Lysosomal Storage Disorders
A postgraduate course on lysosomal storage disorders organised by the University Medical Center Mainz in Nierstein, Germany on 11–14 June 2025.
22nd Postgraduate Course on Lysosomal Storage Disorders Read More »
‘Towards an EU action plan on rare diseases’ Conference
A high-level conference on EU rare diseases policy held in Warsaw on 10 April 2025 under the Polish Presidency of the EU Council.
‘Towards an EU action plan on rare diseases’ Conference Read More »
Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork
A webinar on Tyrosinemia Type 1 from a neurometabolic perspective, organised by the MetabERN AOA Subnetwork on 27 May 2025.
Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork Read More »
Building a Research and Innovation Ecosystem for Rare Diseases
A European Parliament hearing on building a research and innovation ecosystem for rare diseases, organised by Brains4Brain Foundation on 29 April 2025.
Building a Research and Innovation Ecosystem for Rare Diseases Read More »
European Parliament Consultation on Rare Diseases
A public consultation by the European Parliament’s SANT Committee to gather insights on rare disease challenges, open until 31 March 2025.
European Parliament Consultation on Rare Diseases Read More »
