A webinar on brain metabolism of Coenzyme Q, covering COQ2 deficiency and therapeutic strategies. Part of the Brain Metabolism Dialogues series.
Brain metabolism of CoQ, from basic science to clinical practice – Webinar Read More »
A MetabERN webinar on Smith-Lemli-Opitz syndrome featuring expert presentations and patient perspectives from the European SLOS Natural History project.
Webinar – Smith-Lemli-Opitz syndrome from a holistic family perspective Read More »
Apply for the MetabERN Exchange Programme. Short-term visits for IMD professionals at centres across Europe. Deadline: 31 Jan 2026.
The MetabERN Exchange Programme is here! Read More »
ECRD 2026, the largest patient-led rare disease conference in Europe, takes place in Prague on 3-4 June. Registration and poster submissions are open.
European Conference on Rare Disease (ECRD 2026) Read More »
MetabERN and UZA host a Fabry Disease Day in Brussels on 28 March 2026. Focus sessions, expert talks and workshops. Free registration.
MetabERN Fabry Disease Day Read More »
The HLM Rare 2025 launched a Declaration setting strategic priorities for rare disease research and innovation in Europe.
Declaration on the European Innovation and Care Ecosystem for Rare and Complex Diseases Read More »
A webinar on autophagy and brain metabolism, part of the Brain Metabolism Dialogues series. Keynote by Prof. Antonio Zorzano.
Autophagy in Brain Metabolism Webinar Read More »
HLM Rare 2025 takes place in Brussels from 9-11 December. A high-level initiative on rare disease research and innovation in Europe.
High-Level Meeting on the European Research and Innovation Ecosystem for Rare Diseases Read More »
The MetabERN Annual Board Meeting 2025 takes place in Copenhagen on 6-8 November. A three-day event featuring scientific talks and collaborative discussions.
MetabERN Annual Board Meeting 2025 is approaching Read More »
The XVI International Glycogen Storage Disease Conference was held in Getafe on 3-4 October 2025, organised by AEEG. Watch the recorded sessions.
XVI International Glycogen Storage Disease (GSD) Conference Read More »
The ISIMD Annual Conference 2025 takes place in Dublin on 14 November. A hybrid event on new insights and personalised IMD treatments.
ISIMD Annual Conference 2025 Read More »
EU-funded national workshops on cross-border healthcare and patients’ rights. Events in Prague (26 Sept) and Groningen (30 Oct) 2025.
upcoming national workshops on Cross-border Healthcare Read More »
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