MetabERN’s first meeting with Patient and Family Associations established a framework for collaborative rare disease care development.
MetabERN held its first meeting with Patient and Family Associations Read More »
The 2018 edition of Rare Disease Day united communities worldwide to raise awareness and support for people living with rare conditions.
Rare Disease Day 2018 Read More »
The 2018 SBP Rare Disease Symposium and CDG Family Conference showcased international collaboration in CDG research and patient support.
9th Annual SBP Rare Disease Symposium & CDG Family Conference Read More »
E-Rare’s 2018 funding call supports international research teams using multi-omic approaches to investigate rare disease mechanisms.
The Innovative Medicines Initiative’s Call 13 offered funding opportunities across multiple medical research domains through February 2018.
The European Commission’s launch of the Clinical Patient Management System created a new framework for cross-border rare disease care.
The first version for the Clinical Patient Management System (CPMS) is live! Read More »
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