Chairperson

Suzan Genova

Nataliya Foundation

Name and Surname:	Suzàn Genova
Country:	Bulgaria
Contact detail:	suzan . m . genova @ gmail . com
Association Name:	Nataliya Foundation
Disease-related field:	Isovaleric Acidemia (IVA) & Angelman syndrome
Role within the association:	Chairperson
Short bio:	Suzàn is a mother of a child with two rare diseases, dedicated to advancing research and clinical trials that bring hope to families impacted by rare conditions. Her aim is to build a strong community and act as a bridge for communication and understanding between patients and the clinical community, empowering families to find resilience and strength in facing new challenges. By profession, she is an accountant, but by destiny, she is a caregiver and advocate, serving as an ePAG advocate and SPOC for the AOA Subnetwork at MetabERN and an ePAG advocate at ERN-ITHACA.