Anne Hugon

AFG - Association Francophone des Glycogénoses

Name and Surname:	Anne Hugon
Country:	France
Contact detail (e-mail)	ahugon@ wanadoo. fr (anne.hugon@ aphp. fr)
Association Name:	AFG – Association Francophone des Glycogénoses [French Glycogen Storage Diseases – GSD] https://www.glycogenoses.org/
Disease related field:	Glycogen Storage diseases (hepatic and muscular) (CFAO)
Role within association:	Fonder Presidente and Vice Presidente
Short bio – 50 words max (optional):	As a parent concerned with GSD (Glycogen Storage Disease) and professional in the field of Rare Diseases. She has a unique position to open new perspectives and build cooperation’s with HCP and governmental institutions. e-PAG volunteer Eurordis, advocating for patients’ rights and access to diagnostic and quality care for rare diseases. Solidarity and engagement are some of her core values.