MetabERN organizes national workshops to educate patients and families about their rights and the challenges of rare diseases.
National Workshops on Patients’ Rights and Rare Diseases Read More »
MetabERN contributes to the ERICA General Assembly, collaborating with European Reference Networks to enhance rare disease research.
ERICA 4th General Assembly & ERN Research Conference Read More »
The Brains for Brain Foundation announces a special workshop at Sidney Sussex College combining scientific exchange with a tribute to Dr. David Begley.
B4B ANNUAL WORKSHOP AND SPECIAL CELEBRATION 9-11 SEPTEMBER 2024 Read More »
ERDERA Paris announces two Project Manager positions focused on rare disease research, covering funding, education, data management and expertise services.
Career Opportunities at ERDERA Read More »
The Regional Coordinating Centre for Rare Diseases of ASU FC seeks a Medical Writer to support MetabERN’s research promotion activities in Italy.
Job opening: Medical Writer / Research Facilitator Read More »
A three-day interactive course for healthcare professionals on metabolic myopathies diagnosis and management, hosted in Split by Recordati Foundation.
Metabolic myopathies – challenges and solutions / Split, Croatia on May 16-18, 2024 Read More »
MetabERN launches a worldwide survey for PMD specialists to document vitamin and cofactor treatments, aiming to develop standardized recommendations.
The MetabERN Board reunites in Prague for its first face-to-face meeting since the pandemic, discussing key developments in rare diseases.
MetabERN Board meeting in Prague, 13-15 October 2022 Read More »
The International Rare Diseases Research Consortium invites experts to join its Diagnostic Committee for advancing rare disease research.
IRDiRC Diagnostic Scientific Committee Nomination Call Read More »
University Hospital of Santiago de Compostela demonstrates the effective use of CPMS platform for rare metabolic disease management.
New Economist Impact report examines challenges and solutions for rare pediatric neurological diseases treatment in European healthcare.
MetabERN centers in Poland, Hungary, Romania, Slovakia, and Lithuania are ready to provide medical care to Ukrainian patients.
In solidarity with Ukraine and Ukrainian rare metabolic disease patients Read More »
Hey, want to upgrade to pro plan?
Upgrade Now
& get 25% off
Offer valid only for 24 hrs.
