A Romanian physician discusses her experience with MetabERN’s educational programme and its practical impact on managing metabolic disorders.
DCTEP learners’ stories: How does an e-learning on IMDs really look like? Read More »
From 6 to 7 July 2023, the MetabERN centre Sant Joan de Déu Hospital in Barcelona will host the Workshop: “Brain Metabolism Workshop: from rare diseases to common biological pathways”. This will be an excellent occasion for patients, clinicians, and researchers for sharing knowledge and new ideas on brain metabolism as a transversal approach for
Brain Metabolism Workshop – 6-7 July 2023 Read More »
Registration is now open for the “Genetic therapies” course promoted by Recordati Rare Disease Fondation d’Entreprise, which will be held in person from 22 to 24 June 2023, in Heidelberg (Germany). The course will provide valuable insights into the rapidly evolving field of genetic therapies and their application in rare diseases, mainly inherited metabolic diseases.
“Genetic therapies” course in Heidelberg – 22-24 June Read More »
We are delighted to announce the Cross ERN Workshop (MetabERN – ERN TransplantChild – ERN RARE-LIVER) which will be held in Coimbra, Portugal on 8 to 9 June 2023. The workshop is aimed at paediatric, adult physicians, patient associations and patient advocacy organizations from three European Reference Networks and is supported by the EJP RD Support scheme for Networking
Liver Transplant for Inborn Errors of Metabolism – Sharing Knowledge Across ERNs Read More »
Amsterdam UMC hosts a hybrid symposium on gyrate atrophy, bringing together experts and families for research updates and discussion.
Gyrate Atrophy of the Choroid and Retina – International hybrid symposium Read More »
Young healthcare professionals can enhance their knowledge of rare metabolic diseases at this interactive course in Nierstein, Germany.
Postgraduate Course on Lysosomal Storage Disorders in Nierstein Read More »
Padua University hosts a scientific workshop exploring blood-brain barrier research and novel therapeutic strategies in rare diseases.
Research fellowship opportunity offers international training stays for PhD students, postdocs and medical doctors in rare disease research.
EJP Research Mobility Fellowship is now open Read More »
Medical experts gather in Buenos Aires to discuss treatment advances and management strategies for inherited neurometabolic disorders.
The SSIEM Annual Symposium 2022 will focus on metabolism and genetics, fostering discussions and networking in Freiburg from 30 August to 2 September.
SSIEM Annual Symposium 2022 Read More »
Recordati Rare Diseases announces two specialized training courses for healthcare professionals on inherited metabolic disease management.
Recordati Rare Diseases – Training courses on inherited metabolic diseases Read More »
A workshop on endocrine cancer for ERN specialists will take place on 4 May 2022 in Gliwice, Poland. Free participation and travel support.
EJP RD WORKSHOP – Endocrine cancer: A challenge in adults and children Read More »
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