Recordati advanced course on liver and liver-kidney transplantation for inherited metabolic disorders
A Recordati Rare Disease Foundation course on liver and liver-kidney transplantation for inherited metabolic disorders in London, 12–14 June 2025.
Education for Professionals
Brain Metabolism Dialogues – webinar series
A joint MetabERN and SSIEM webinar series bridging clinical neurology and basic scientific research in brain metabolism.
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Online Webinar “Think Ammonia”
A webinar raising awareness on hyperammonemia, organised by Krikos Zois and Metabolic Support UK with MetabERN endorsement.
Online Webinar “Think Ammonia” Read More »
1st SYMPOSIUM “Connection Between Physics and Metabolism in Brain Function”
An analysis of how physical principles influence metabolic processes in brain function, highlighting recent research findings.
1st SYMPOSIUM “Connection Between Physics and Metabolism in Brain Function” Read More »
Postgraduate Course on Lysosomal Storage Disorders in Nierstein
On 26-29 June 2024 the 21st edition of the Postgraduate Course on Lysosomal Storage Disorders will be hosted in Nierstein, close to Mainz. The course aims to improve the knowledge of Lysosomal Storage Disorders in young physicians and scientists with an interest in this field and with clinical experience. The special atmosphere and the interactive character
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DCTEP Learners’ Stories: What does an educational programme on IMDs have to offer to young healthcare professionals?
A medical resident shares insights on MetabERN’s educational programme for inherited metabolic disorders and its impact on professional development.
MOOC From Lab to Clinic: Translational Research for Rare Diseases
The French Foundation for Rare Diseases launches an online course exploring translational research pathways from drug discovery to clinical trials.
MOOC From Lab to Clinic: Translational Research for Rare Diseases Read More »
DCTEP learners’ stories: How does an e-learning on IMDs really look like?
A Romanian physician discusses her experience with MetabERN’s educational programme and its practical impact on managing metabolic disorders.
DCTEP learners’ stories: How does an e-learning on IMDs really look like? Read More »
Brain Metabolism Workshop – 6-7 July 2023
From 6 to 7 July 2023, the MetabERN centre Sant Joan de Déu Hospital in Barcelona will host the Workshop: “Brain Metabolism Workshop: from rare diseases to common biological pathways”. This will be an excellent occasion for patients, clinicians, and researchers for sharing knowledge and new ideas on brain metabolism as a transversal approach for the
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“Genetic therapies” course in Heidelberg – 22-24 June
Registration is now open for the “Genetic therapies” course promoted by Recordati Rare Disease Fondation d’Entreprise, which will be held in person from 22 to 24 June 2023, in Heidelberg (Germany). The course will provide valuable insights into the rapidly evolving field of genetic therapies and their application in rare diseases, mainly inherited metabolic diseases. It
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Liver Transplant for Inborn Errors of Metabolism – Sharing Knowledge Across ERNs
We are delighted to announce the Cross ERN Workshop (MetabERN – ERN TransplantChild – ERN RARE-LIVER) which will be held in Coimbra, Portugal on 8 to 9 June 2023. The workshop is aimed at paediatric, adult physicians, patient associations and patient advocacy organizations from three European Reference Networks and is supported by the EJP RD Support scheme for Networking initiatives
Liver Transplant for Inborn Errors of Metabolism – Sharing Knowledge Across ERNs Read More »
Gyrate Atrophy of the Choroid and Retina – International hybrid symposium
Amsterdam UMC hosts a hybrid symposium on gyrate atrophy, bringing together experts and families for research updates and discussion.
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