A Rare Disease Day event held at Udine Castle on 11 February 2025, organised by UNIAMO in collaboration with MetabERN.
#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle Read More »
A webinar on emergency care and pain management for Sanfilippo Syndrome patients, hosted by Sanfilippo Fighters and MetabERN.
SanFilippo Webinar – Urgencies & Pain Management Read More »
A GLI webinar explored challenges in diagnosing and treating rare paediatric liver diseases, their impact on families, and recent scientific advances.
Rare Liver Diseases in Europe – Recent Webinar by GLI Read More »
The MetabERN Coordination Office met in Brussels to discuss achievements, future priorities, and projects for rare metabolic disease care.
MetabERN Coordination Office meeting in Brussels Read More »
A Slovenian Presidency event explored newborn screening equity in the EU. Watch expert presentations now on YouTube.
Experts and patient representatives discussed newborn screening registries, case definitions, and a roadmap for an equitable NBS system.
Metabern & ISNS meeting – Moving towards NBS as a system: Setting out the roadmap Read More »
Rare Disease Day Verona | A weekend programme, planned by AISMME, starting with a webinar on February 26th at 17:30 to 19:00.
Rare Disease Day Verona | Weekend Programme Read More »
Rare Disease Day webinar presented by Freiburg Centre for Rare Diseases on 26th February 2021 from 15:00 – 17:15.
Rare Disease Day Freiburg | Webinar | 26 February 2021 Read More »
An EJP RD webinar on 2 Feb 2021 will present the Joint Transnational Call on rare disease research. Registration closes 29 Jan.
Information Webinar | February 2nd, 2021 Read More »
The objective of the EJPRD policy meeting is to kick off the discussion on the future Rare Diseases Partnership under Horizon Europe (HE).
EJPRD Policy Meeting | 12 – 13 January 2021 Read More »
MPS Expert Webinar | GENE THERAPY CTs FOR MPS TYPE III July 21th 2021.
MPS Expert Webinar | GENE THERAPY CTs FOR MPS TYPE III Read More »
ECRD 2020 overarching theme & six parallel themes, online on May 14-15, 2020 – “The journey of living with a rare disease in 2030”.
10th ECRD | Online, 14-15 May 2020 Read More »
Hey, want to upgrade to pro plan?
Upgrade Now
& get 25% off
Offer valid only for 24 hrs.
