Past Event

Uniamo

#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle

On February 11, the Parliament Hall of Udine Castle hosted an event for Rare Diseases Day, organized by UNIAMO Federazione Italiana Malattie Rare in collaboration with the Udine University Hospital (Azienda Sanitaria Friuli Centrale-ASU FC) and MetabERN. This initiative was part of the #UNIAMOleforze campaign, featuring over 60 events throughout February to raise awareness of […]

#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle Read More »

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SanFilippo Webinar – Urgencies & Pain Management

The SanFilippo Fighters Patient Organisation and the European Reference Network for Inherited Metabolic Diseases (MetabERN) invite you to the first session of an exciting webinar series exploring various aspects of SanFilippo Syndrome. This webinar offers a unique opportunity to learn from the following leading experts in the field: Dr. Serena GasperiniIRCCS San Gerardo dei Tintori

SanFilippo Webinar – Urgencies & Pain Management Read More »

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