Two key events under the Czech EU Presidency address newborn screening and policy framework development for rare disease management.
Rare Diseases events under the Czech EU Council Presidency Read More »
The MetabERN Board reunites in Prague for its first face-to-face meeting since the pandemic, discussing key developments in rare diseases.
MetabERN Board meeting in Prague, 13-15 October 2022 Read More »
Research fellowship opportunity offers international training stays for PhD students, postdocs and medical doctors in rare disease research.
EJP Research Mobility Fellowship is now open Read More »
A landmark national meeting in Udine addresses the growing challenges of managing inherited metabolic diseases in the adult population.
First Italian National Meeting on Rare Inherited Metabolic Diseases in Adults Read More »
The International Rare Diseases Research Consortium invites experts to join its Diagnostic Committee for advancing rare disease research.
IRDiRC Diagnostic Scientific Committee Nomination Call Read More »
Brussels hosts the third Innovation Bootcamp exploring key challenges in rare disease diagnosis, treatment and drug development.
Innovation Bootcamp in Rare Diseases (IBRD2022) congress Read More »
June 28 marks the International Neonatal Screening Day, promoting early detection and treatment of rare conditions in newborns.
International Neonatal Screening Day Read More »
June 28 marks the International Neonatal Screening Day, promoting early detection and treatment of rare conditions in newborns.
2023 EU4Health Stakeholders’ Event Read More »
MetabERN’s European survey on pregnancy and family planning for rare disease patients and clinicians aims to improve healthcare standards.
Pregnancy and Family Planning in rare diseases: a survey for patients and clinicians Read More »
University Hospital of Santiago de Compostela demonstrates the effective use of CPMS platform for rare metabolic disease management.
MetabERN members publish groundbreaking research on inflammation and immunomodulatory treatment for Mucopolysaccharidoses patients.
Inflammation & Immunomodulatory Drugs in MPS – New pubblication Read More »
New Economist Impact report examines challenges and solutions for rare pediatric neurological diseases treatment in European healthcare.
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