European training network offering interdisciplinary PhD positions in Systems Medicine research for inherited metabolic disorders.
PhD positions for the Marie-Curie Innovative Training Network Read More »
Polimer consortium aims to set a landmark in the present European Higher Education Area as the first research training initiative in personalised ‘Systems Medicine’.
Polymers in the Liver: Metabolism and Regulation Read More »
The September 2018 webinar series provided training on RD-Connect’s integrated platforms for rare disease research and analysis.
RD-Connect webinars to support your research Read More »
A comprehensive collection of documents showcasing MetabERN’s achievements, future plans and educational materials.
Informative Materials, what we’ve been up to. Read More »
The 2018 technical assessment and audit process for selected European Reference Network members by the Andalusian quality agency.
Technical Assessment and Audit by Andalusian Agency for Healthcare Quality (ACSA) Read More »
The EU’s 2021-2027 budget includes €413M for health policies under ESF+. Other funding sources will also support public health.
Health policies in the future EU budget (2021-2027) Read More »
Plaza, a new forum on the ERN Collaborative Platform, allows ERN members to connect, share updates, and collaborate.
Plaza in ERN Collaborative Platform (ECP) Read More »
On 29-30 May 2018, EMA and ERNs discussed how to collaborate to improve clinical research on rare and complex diseases.
An insightful analysis of five common myths about orphan drugs and their real impact on healthcare systems and rare disease treatment.
NORD Launches RareInsights – 5 Myths About Orphan Drugs Read More »
The members of the “conect4children” (c4c) initiative today announced the start of a large collaborative paediatric network that will facilitate the development of new drugs and other therapies for the entire paediatric population in Europe.
Chafea organised a kick-off meeting for five new rare diseases’ registries in Luxembourg on the 17th of April 2018, which involved 40 participants.
Chafea organised kick-off meeting for five new rare diseases’ registries Read More »
Health Commissioner Andriukaitis evaluates the first year of ERN operations and outlines key challenges for rare disease networks.
RARE DISEASE NETWORKS, ONE YEAR IN Read More »
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