Analysis of European Union legislation governing the development and authorization of medicines for rare and pediatric diseases.
Evaluation of the legislation on medicines for children and rare diseases Read More »
A collaborative research questionnaire developed to advance understanding of immune system function in CDG patients and caregivers.
Patient Centred Research Tool Read More »
Analysis of MetabERN’s 2018 healthcare provider survey on training needs and educational approaches for rare metabolic diseases.
Questionnaires about training and education in HCPs of MetabERN Read More »
An intensive course providing neonatologists with essential skills for diagnosing and treating inherited metabolic disorders in newborns.
The July 2019 European Gaucher Disease congress in Clermont-Ferrand united experts to address challenges for the years 2020-2025.
13th EWGGD: Gaucher disease: 2020-2025 challenges Read More »
The 2019 University Medical Center Groningen summer program offered international students advanced training in pediatric medicine.
The 26th edition of the Summer School on Pediatrics Read More »
Cystinosis Ireland planned to host the international conference in Dublin, July 2020, to advance research and patient support.
International Cystinosis Conference 2020 Read More »
European training network offering interdisciplinary PhD positions in Systems Medicine research for inherited metabolic disorders.
PhD positions for the Marie-Curie Innovative Training Network Read More »
Polimer consortium aims to set a landmark in the present European Higher Education Area as the first research training initiative in personalised ‘Systems Medicine’.
Polymers in the Liver: Metabolism and Regulation Read More »
The September 2018 webinar series provided training on RD-Connect’s integrated platforms for rare disease research and analysis.
RD-Connect webinars to support your research Read More »
A comprehensive collection of documents showcasing MetabERN’s achievements, future plans and educational materials.
Informative Materials, what we’ve been up to. Read More »
The 2018 technical assessment and audit process for selected European Reference Network members by the Andalusian quality agency.
Technical Assessment and Audit by Andalusian Agency for Healthcare Quality (ACSA) Read More »
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