E.S.PKU Conference, 1-4 November 2018
The E.S.PKU Conference 2018 will take place, at Hotel NH Venezia Laguna Palace, Venice, Italy, from November 1st to November 4th.
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Events
PKU Policy Roundtable Final Report, 11 July 2018
The July 2018 Brussels roundtable brought together experts and policymakers to advance European initiatives for PKU patient care.
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30th E.S.PKU Conference
It is with great pleasure that I welcome you all to the 30th Annual ESPKUConference here in Dublin, Ireland. This is the first time we have been here andwe really appreciate their enthusiasm in going all out to hold the Conference. Theyhave worked tremendously hard in such a short space of time to get things
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E.S. PKU Learn more about the 29th annual conference
Post-Conference Infos E.S.PKU Conference 2015 is already history. We are very proud to have welcome over 450 participants to Berlin, Germany. As the conference has passed we want to provide additional information for you on this dedicated page. You will find more information about the presentations. We understand that you might be interested to get
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The Romanian Foundation for Lysosomal Diseases turns 20
The Romanian Foundation for Lysosomal Diseases (FRBL), founded in 1998 in Cluj-Napoca, has marked 20 years since its inception.
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CPMS for New Users, 16th October 2018
The October 2018 webinar provided essential training for new MetabERN members using the Clinical Patient Management System.
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SAVE THE DATE – LA VOCE DEL PAZIENTE RARO, OCTOBER 26, 2018
The October 2018 Cagliari conference empowered Sardinian rare disease patient associations through training and collaboration.
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Save the Date – ERN Lung Webinar, 20th of November from 14h – 16h CET
The November 2018 ERN-LUNG webinar shared expertise on clinical trials network development using cystic fibrosis as example.
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Effective ways of Investing in Health, Expert Panel, 25 September 2018
The September 2018 Expert Panel hearing explored expanding European Reference Networks beyond rare disease healthcare delivery.
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Modern Management of Inherited Metabolic Disease
Modern Management of Inherited Metabolic Disorders course hosted by Recordati on in Rio de Janeiro, Brazil 18 – 20 October 2018.
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International Gaucher Day. Follow the campaign
The October 2018 #rarestars campaign showcased healthcare professionals dedicated to improving Gaucher disease patient care.
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Survey for Patients. Let us hear your voice.
MetabERN invites IMD patients and families to complete a survey on their needs and expectations. Available in 7 languages.
Survey for Patients. Let us hear your voice. Read More »
