Innovation Bootcamp in Rare Diseases | 3-5 November 2019
Innovation Bootcamp in rare diseases is taking place in Leuven on the 4-5 November in Leuven, Belgium.
Innovation Bootcamp in Rare Diseases | 3-5 November 2019 Read More »
Events
5th International GSD Conference | 14-16 November 2019
The 5th International GSD Conference (IGSD2019), taking place in Porto Alegre from 14-16 November 2019.
5th International GSD Conference | 14-16 November 2019 Read More »
1st MetabERN Annual Meeting 2017: kick off meeting
The 2017 inaugural meeting established MetabERN as the European Reference Network for rare hereditary metabolic disorders.
1st MetabERN Annual Meeting 2017: kick off meeting Read More »
MetabERN Annual Meeting 2018: The Work done in Work Package 7
The 2018 MetabERN meeting reviewed achievements in healthcare provider collaboration and patient organization engagement.
MetabERN Annual Meeting 2018: The Work done in Work Package 7 Read More »
16th Joint EMAEUnetHTA Meeting | 7 December 2018
The December 2018 meeting between EMA and EUnetHTA addressed key aspects of evidence generation and assessment in Europe.
16th Joint EMAEUnetHTA Meeting | 7 December 2018 Read More »
4th Conference on European Reference Networks, 21 -22 November, 2018
On November 21 and 22, the 4th Conference on European Reference Networks took place in Brussels, Belgium.
4th Conference on European Reference Networks, 21 -22 November, 2018 Read More »
Lysosomal Storage Disease Subnetwork Meeting, 3 November 2018
On November 3rd the first meeting of the subnetwork for Lysosomal Storage Diseases (LSDs) of MetabERN will take place in Rotterdam, the Netherlands.
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Winter School “MITOCHONDRIA IN HEALTH AND DISEASE” 17-21 December 2018
This Winter School is organised as part of the “Next Generation Life Scientists” Graduate School of Research.
Winter School “MITOCHONDRIA IN HEALTH AND DISEASE” 17-21 December 2018 Read More »
CPMS Webinar For New Users – 20th November 2018
The November 2018 webinar provided essential training for new users of the Clinical Patient Management System platform.
CPMS Webinar For New Users – 20th November 2018 Read More »
E.S.PKU Conference, 1-4 November 2018
The E.S.PKU Conference 2018 will take place, at Hotel NH Venezia Laguna Palace, Venice, Italy, from November 1st to November 4th.
E.S.PKU Conference, 1-4 November 2018 Read More »
PKU Policy Roundtable Final Report, 11 July 2018
The July 2018 Brussels roundtable brought together experts and policymakers to advance European initiatives for PKU patient care.
PKU Policy Roundtable Final Report, 11 July 2018 Read More »
30th E.S.PKU Conference
It is with great pleasure that I welcome you all to the 30th Annual ESPKUConference here in Dublin, Ireland. This is the first time we have been here andwe really appreciate their enthusiasm in going all out to hold the Conference. Theyhave worked tremendously hard in such a short space of time to get things
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