A Swiss educational program bringing together experts and researchers to advance rare disease understanding through lectures and workshops.
7th radiz Rare Disease Summer School | 10-12 July 2019 Read More »
In this Satellite Meeting, professionals will discuss the necessity for a clear CDG definition, the CDG Nomenclature and Nosology (classification of a list of diseases).
1st CDG Satellite Meeting, 25th July 2019 | Lisbon Read More »
4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: \”The CDG road: from diagnosis to therapies\” Lisbon, Portugal – 26 and 27 July 2019.
4th World Conference on CDG, 26-27 July 2019 | Lisbon Read More »
The September 2019 SSIEM Symposium in Rotterdam connected experts and new scientists to advance metabolic disease research.
SSIEM 2019 Annual Symposium | 3-6 September Read More »
The International Congress on Porphyrins and Porphyrias 2019 in Milan, will take place at the University of Milan from 8th to 11th September 2019.
International Congress on Porphyrins and Porphyrias 2019 Read More »
Innovation Bootcamp in rare diseases is taking place in Leuven on the 4-5 November in Leuven, Belgium.
Innovation Bootcamp in Rare Diseases | 3-5 November 2019 Read More »
The 5th International GSD Conference (IGSD2019), taking place in Porto Alegre from 14-16 November 2019.
5th International GSD Conference | 14-16 November 2019 Read More »
The 2017 inaugural meeting established MetabERN as the European Reference Network for rare hereditary metabolic disorders.
1st MetabERN Annual Meeting 2017: kick off meeting Read More »
The 2018 MetabERN meeting reviewed achievements in healthcare provider collaboration and patient organization engagement.
MetabERN Annual Meeting 2018: The Work done in Work Package 7 Read More »
The December 2018 meeting between EMA and EUnetHTA addressed key aspects of evidence generation and assessment in Europe.
16th Joint EMAEUnetHTA Meeting | 7 December 2018 Read More »
On November 21 and 22, the 4th Conference on European Reference Networks took place in Brussels, Belgium.
4th Conference on European Reference Networks, 21 -22 November, 2018 Read More »
On November 3rd the first meeting of the subnetwork for Lysosomal Storage Diseases (LSDs) of MetabERN will take place in Rotterdam, the Netherlands.
Lysosomal Storage Disease Subnetwork Meeting, 3 November 2018 Read More »
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