Events

The misdiagnosis of metabolic diseases\’ webinars are free, and a certificate of attendance will be provided by the for those who attend all sessions.

The International Course Training on strategies to foster solutions of undiagnosed rare disease cases is part of a series of training activities.

A comprehensive webinar from CEMA UZA Belgium explores protocols and challenges in transitional care for metabolic disease patients.

Annual meeting documentation detailing progress reports for MetabERN’s Workpackage 2 and Workpackage 7 initiatives.

A collaborative workshop at Hospital 12 de Octubre Madrid sharing practical guidance and recipes for managing low protein diets.

A comprehensive questionnaire gathering patient perspectives on clinical trials across the European rare metabolic disease network.

Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point Rare Disease Day in their life.

A February 19 training session introducing the new Clinical Patient Management System 17.0 features for all ERN network members.

The February 4-8 annual symposium in Orlando brings together global experts to discuss latest advances in lysosomal disease research.

A Vienna congress uniting global rare disease experts to discuss treatment advances, clinical trials and patient-focused innovation.