RARE2019, 4-5 March 2019 | Vienna, Austria
A Vienna congress uniting global rare disease experts to discuss treatment advances, clinical trials and patient-focused innovation.
RARE2019, 4-5 March 2019 | Vienna, Austria Read More »
Events
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt
Annual MetabERN Board meeting starting on Thursday 4 April (start time 14.00) to Saturday 6 April (finishing at 13.00).Â
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt Read More »
SSIEM NGS Course | 18-20 March 2019
The 2019 SSIEM NGS Course will take place at the University of Barcelona, Faculty of Medicine, 18th to 20th March 2019. The first day will start at 11:30h.
SSIEM NGS Course | 18-20 March 2019 Read More »
NS2 – “New Challenges, New Services” | April 5-6 2019
L’obiettivo degli incontri è condividere la nostra esperienza in materia di helpline – servizi di ascolto, informazione e orientamento per le malattie rare, e fornire alcuni strumenti per interpretare al meglio il ruolo di ascolto ed empatia richiesto da questo tipo di servizio da parte delle Associazioni.
NS2 – “New Challenges, New Services” | April 5-6 2019 Read More »
SSIEM ACADEMY COURSE | 29 – 30 April 2019
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
SSIEM ACADEMY COURSE | 29 – 30 April 2019 Read More »
7th Fabry Expert Meeting | 21/22 – 26 May 2019
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
12th International Conference on Homocysteine | 9-13 June
A multidisciplinary scientific conference in Catalonia exploring advances in one-carbon metabolism, B vitamins and homocysteine research.
12th International Conference on Homocysteine | 9-13 June Read More »
EULAR 2019, 12-15 June | Madrid, Spain
A landmark Madrid congress combining adult and pediatric rheumatology expertise through EULAR and PReS collaboration.
EULAR 2019, 12-15 June | Madrid, Spain Read More »
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019
A specialized course in Santiago de Compostela training pediatricians to diagnose and manage inherited metabolic disorders in newborns.
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019 Read More »
Summer School on Paediatrics, 3-12 July 2019 | Groningen
A comprehensive two-week pediatric medicine program in Groningen combining innovative lectures with hands-on clinical research experience.
Summer School on Paediatrics, 3-12 July 2019 | Groningen Read More »
7th radiz Rare Disease Summer School | 10-12 July 2019
A Swiss educational program bringing together experts and researchers to advance rare disease understanding through lectures and workshops.
7th radiz Rare Disease Summer School | 10-12 July 2019 Read More »
1st CDG Satellite Meeting, 25th July 2019 | Lisbon
In this Satellite Meeting, professionals will discuss the necessity for a clear CDG definition, the CDG Nomenclature and Nosology (classification of a list of diseases).
1st CDG Satellite Meeting, 25th July 2019 | Lisbon Read More »
