CPMS | NEWSLETTER | ERN
HealthFlex
×
  • Home
  • The Network
    • Who We Are
    • Our Vision, Mission & Aim
    • Structure & Governance
    • Specialised Centres
    • Coordinators
    • Stakeholders & Supporters
    • Informative Materials
  • For Patients
    • Patient Board
    • Find a specialist centre
    • Patient Organisations
    • Patient Resources
    • Cross-border Healthcare
  • Expertise
    • Evaluation
    • Education Programme
    • Guidelines
    • UIMD Registry
    • Subnetworks
    • Work Packages
    • Transversal Activities
    • CPMS Support
    • Resources
  • News & Events
    • News
    • Events
  • Activities
    • Projects
    • Publications
  • Contact Us

In solidarity with Ukraine and Ukrainian rare metabolic disease patients

In solidarity with Ukraine and Ukrainian rare metabolic disease patients
NewsOtherResources

 

MetabERN expresses deep concerns with respect to the ongoing escalating and catastrophic crisis in Ukraine, which is dramatically affecting the lives of millions of Ukrainian citizens. Rare diseases and rare metabolic disease patients are expected to be among the refugee population fleeing Ukraine to neighbour countries.

In solidarity with the Ukrainian people, including Ukrainian rare metabolic patients, MetabERN centres, especially in neighbouring countries, are keen and ready to provide medical services for patients suffering from rare metabolic diseases. Below, you can find the list of our centres in countries close by to Ukraine.

Please, share this information with everyone concerned to help reach out to those patients. For any informational requests, please, contact the Coordination Office via mail (coordination@metab.ern-net.eu).

 

MetabERN centres in Poland:

SP ZOZ Szpital Uniwersytecki w Krakowie, Kraków

Instytut Matki i Dziecka (IMiD) /Institute of Mother and Child (IMC), Warsaw

Instytut “Pomnik-Centrum Zdrowia Dziecka”, Warsaw

MetabERN centres in Hungary:

University Hospital of Debrecen, Debrecen

MetabERN centres in Romania:

Spitalul Clinic de Urgenta pentru Copii, Cluj-Napoca

MetabERN centres in Slovakia:

National Institute of Children’s Diseases, Bratislava

MetabERN centres in Lithuania:

Vilnius University Hospital Santaros klinikos, Vilnius

 

All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign (#ERNcare4Ua) to collect information to help health professionals find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

Visit the ERNcare4Ua website, originated by the joint effort of all 24 European Reference Networks to help health professionals find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

Search

Last News & Events

  • Liver Transplant for Inborn Errors of Metabolism – Sharing Knowledge Across ERNs
  • 6th World Conference on CDG – 21-23 July 2023
  • Gyrate Atrophy of the Choroid and Retina – International hybrid symposium
  • 2023 CTX International Scientific Meeting in Jerusalem
  • Postgraduate Course on Lysosomal Storage Disorders in Nierstein
  • EVALUATING THE DIRECT AND INDIRECT COSTS OF FABRY DISEASE IN ITALY
  • EJP RD workshop – The Blood-Brain Barrier: current research and novel therapeutic crossing approaches
  • Patient representatives for Smith-Lemli-Opitz syndrome are looking for European families

Activities

  • Publications and Guidelines
  • Unified Registry for Inherited Metabolic Disorders
  • Projects

Disclaimer

MetabERN is a European Reference Network (ERN) approved by the ERN Board of Member States.
The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

For more information please contact
Prof. Maurizio Scarpa, MD, PhD
MetabERN Coordinator

Newsletter

Sign up to the MetabERN newsletter

Follow us on Twitter

Tweets by @Metab_ERN

Search the website


Copyright ©2017-2021 all rights reserved
Previous Content

Web by EFFIGE 2.0
To provide the best possible service, we use technical, statistical and third-party cookies on this site. Continuing the navigation you consent to use them. Accept Reject Read More
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT