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#ERNcare4UA – A dedicated website to help health professionals find support for Ukrainian patients

#ERNcare4UA – A dedicated website to help health professionals find support for Ukrainian patients
NewsResources

All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign (#ERNcare4Ua) to collect information to help health professionals find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

 

WE ARE HERE TO HELP!

 

With the ongoing war, a large number of Ukrainian citizens have very difficult access to care in Ukraine or are fleeing to EU countries, mainly Eastern ones for the time being. Many of those refugees have or will have health problems. EU governments have in the last few days clearly committed to ensure adequate healthcare to those refugees, including patients requiring chronic treatments.

Some of those Ukrainian citizens will however suffer from one of the known 6000 rare diseases, like about 6% of the European Union Population. For those disorders, sometimes very rare, expertise is often lacking in many regions or even countries, and treatments may be very expensive and/or difficult to obtain in many centers.

Our 24 ERNs for rare diseases networks are specialized in the diagnosis and treatment of rare/ very rare illnesses in each of the 24 medical specialties. They include hospitals (healthcare providers or HCP), generally university centers, distributed in most or all EU countries (depending on the ERN), including in EU countries neighbouring Ukraine.

Read the statement issued by the Coordinators of the 24 European Reference Networks (ERNs) to support people with Rare Diseases and Complex Conditions affected by the war in Ukraine.

 

Visit the ERNcare4Ua website for more information and find the list of our centers in countries close to Ukraine, that are keen and ready to provide medical services.

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Disclaimer

MetabERN is a European Reference Network (ERN) approved by the ERN Board of Member States.
The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

For more information please contact
Prof. Maurizio Scarpa, MD, PhD
MetabERN Coordinator

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