Young healthcare professionals can enhance their knowledge of rare metabolic diseases at this interactive course in Nierstein, Germany.
Postgraduate Course on Lysosomal Storage Disorders in Nierstein Read More »
Padua University hosts a scientific workshop exploring blood-brain barrier research and novel therapeutic strategies in rare diseases.
Medical experts gather in Buenos Aires to discuss treatment advances and management strategies for inherited neurometabolic disorders.
Recordati Rare Diseases announces two specialized training courses for healthcare professionals on inherited metabolic disease management.
Recordati Rare Diseases – Training courses on inherited metabolic diseases Read More »
A GLI webinar explored challenges in diagnosing and treating rare paediatric liver diseases, their impact on families, and recent scientific advances.
Rare Liver Diseases in Europe – Recent Webinar by GLI Read More »
A workshop on endocrine cancer for ERN specialists will take place on 4 May 2022 in Gliwice, Poland. Free participation and travel support.
EJP RD WORKSHOP – Endocrine cancer: A challenge in adults and children Read More »
An in-person course on MPS for clinicians and nurses will be held in Manchester on 11-12 Nov 2021. Limited places available.
Changing the clinical picture of MPS – Preceptorship medical course (in-person) Read More »
A free online seminar for paediatricians on early DMD diagnosis will launch in Spring 2022. Take the survey and register interest.
TREAT-NMD DMD Early Diagnosis Training Seminar Read More »
The COVID-19 pandemic is testing the resilience of robust health systems around the world. This may be impacting you in many different ways, such as creating additional anxiety or exacerbating other medical or therapy issues related to your Inherited Metabolic Diseases (IMD).
COVID-19 Recommendations for all Rare IMD Patients and Caregivers Read More »
Are you interested in calls and training courses of the European Joint Programme on Rare Diseases? Click here to discover what the EJPRD are planning.
European Joint Programme on Rare Diseases | Calls and Training Courses Read More »
The commentary ‘Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook’ has been published in Nature Reviews
IRDIRC Orphan Drug Development Guidebook Read More »
Enhancing the Quality of Life of Persons Affected by Mucopolysaccharide Across Europe. By taking a multidisciplinary healthcare team approach we can better understand how to work with colleagues to support patients with MPS with their everyday healthcare needs, as well as by having a better understanding of the latest treatment options.
New Free-to-View Live Webinars | May – June 2020 Read More »
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