The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
A landmark Madrid congress combining adult and pediatric rheumatology expertise through EULAR and PReS collaboration.
EULAR 2019, 12-15 June | Madrid, Spain Read More »
A specialized course in Santiago de Compostela training pediatricians to diagnose and manage inherited metabolic disorders in newborns.
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019 Read More »
4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: \”The CDG road: from diagnosis to therapies\” Lisbon, Portugal – 26 and 27 July 2019.
4th World Conference on CDG, 26-27 July 2019 | Lisbon Read More »
The International Congress on Porphyrins and Porphyrias 2019 in Milan, will take place at the University of Milan from 8th to 11th September 2019.
International Congress on Porphyrins and Porphyrias 2019 Read More »
The 5th International GSD Conference (IGSD2019), taking place in Porto Alegre from 14-16 November 2019.
5th International GSD Conference | 14-16 November 2019 Read More »
The 2017 inaugural meeting established MetabERN as the European Reference Network for rare hereditary metabolic disorders.
1st MetabERN Annual Meeting 2017: kick off meeting Read More »
A comprehensive overview of CDG patient advocacy groups and representatives working to advance awareness, research and treatment options.
CDG Patient Groups and Advocates Read More »
The EUProtects campaign showcases how European Reference Networks demonstrate EU collaboration in healthcare protection.
EUProtects Campaign Read More »
A worldwide alliance of non-profit organizations providing support and advancing research for Niemann-Pick Disease communities.
Inpda: International Niemann–Pick Disease Alliance Read More »
The November 2018 webinar provided essential training for new users of the Clinical Patient Management System platform.
CPMS Webinar For New Users – 20th November 2018 Read More »
The E.S.PKU Conference 2018 will take place, at Hotel NH Venezia Laguna Palace, Venice, Italy, from November 1st to November 4th.
E.S.PKU Conference, 1-4 November 2018 Read More »
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