MPS Awareness Day: What is your MPS Challenge?
The European patient organisation MPS Europe has asked people with MPS, their relatives and their physicians: What is your MPS Challenge?
MPS Awareness Day: What is your MPS Challenge? Read More »
ERN activity Report for the month of March 2019
ERN activity report of the European Collaborative Platform and Clinical Patient Management System usage for the month of March.
ERN activity Report for the month of March 2019 Read More »
2nd Low Protein Diet Course | 29 March 2019
A collaborative workshop at Hospital 12 de Octubre Madrid sharing practical guidance and recipes for managing low protein diets.
2nd Low Protein Diet Course | 29 March 2019 Read More »
Clinical Patient Management System Meeting Report
On January 14th, 2019, a Clinical Patient Management System meeting is took place at the University Medical Center Groningen (UMCG) in Groningen, The Netherlands.
Clinical Patient Management System Meeting Report Read More »
Collaboration on Ultra-Rare Disorders of Sulfur Metabolism
A collaborative research initiative within MetabERN’s AOA subnetwork investigating ultra-rare disorders of sulfur metabolism.
Collaboration on Ultra-Rare Disorders of Sulfur Metabolism Read More »
3rd International Homocystinurias Meeting | 28 February – 1 March 2019
3rd International Homocystinurias Patient-Expert Meeting on Thursday 28th February – Friday 1st March 2019 in Rome, Italy.
3rd International Homocystinurias Meeting | 28 February – 1 March 2019 Read More »
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt
Annual MetabERN Board meeting starting on Thursday 4 April (start time 14.00) to Saturday 6 April (finishing at 13.00).Â
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt Read More »
SSIEM NGS Course | 18-20 March 2019
The 2019 SSIEM NGS Course will take place at the University of Barcelona, Faculty of Medicine, 18th to 20th March 2019. The first day will start at 11:30h.
SSIEM NGS Course | 18-20 March 2019 Read More »
SSIEM ACADEMY COURSE | 29 – 30 April 2019
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
SSIEM ACADEMY COURSE | 29 – 30 April 2019 Read More »
7th Fabry Expert Meeting | 21/22 – 26 May 2019
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
EULAR 2019, 12-15 June | Madrid, Spain
A landmark Madrid congress combining adult and pediatric rheumatology expertise through EULAR and PReS collaboration.
EULAR 2019, 12-15 June | Madrid, Spain Read More »
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019
A specialized course in Santiago de Compostela training pediatricians to diagnose and manage inherited metabolic disorders in newborns.
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019 Read More »
