SSIEM NGS Course | 18-20 March 2019
The 2019 SSIEM NGS Course will take place at the University of Barcelona, Faculty of Medicine, 18th to 20th March 2019. The first day will start at 11:30h.
SSIEM NGS Course | 18-20 March 2019 Read More »
SSIEM ACADEMY COURSE | 29 – 30 April 2019
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
SSIEM ACADEMY COURSE | 29 – 30 April 2019 Read More »
7th Fabry Expert Meeting | 21/22 – 26 May 2019
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
EULAR 2019, 12-15 June | Madrid, Spain
A landmark Madrid congress combining adult and pediatric rheumatology expertise through EULAR and PReS collaboration.
EULAR 2019, 12-15 June | Madrid, Spain Read More »
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019
A specialized course in Santiago de Compostela training pediatricians to diagnose and manage inherited metabolic disorders in newborns.
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019 Read More »
4th World Conference on CDG, 26-27 July 2019 | Lisbon
4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: \”The CDG road: from diagnosis to therapies\” Lisbon, Portugal – 26 and 27 July 2019.
4th World Conference on CDG, 26-27 July 2019 | Lisbon Read More »
International Congress on Porphyrins and Porphyrias 2019
The International Congress on Porphyrins and Porphyrias 2019 in Milan, will take place at the University of Milan from 8th to 11th September 2019.
International Congress on Porphyrins and Porphyrias 2019 Read More »
5th International GSD Conference | 14-16 November 2019
The 5th International GSD Conference (IGSD2019), taking place in Porto Alegre from 14-16 November 2019.
5th International GSD Conference | 14-16 November 2019 Read More »
1st MetabERN Annual Meeting 2017: kick off meeting
The 2017 inaugural meeting established MetabERN as the European Reference Network for rare hereditary metabolic disorders.
1st MetabERN Annual Meeting 2017: kick off meeting Read More »
CDG Patient Groups and Advocates
A comprehensive overview of CDG patient advocacy groups and representatives working to advance awareness, research and treatment options.
CDG Patient Groups and Advocates Read More »
EUProtects Campaign
The EUProtects campaign showcases how European Reference Networks demonstrate EU collaboration in healthcare protection.
EUProtects Campaign Read More »
Inpda: International Niemann–Pick Disease Alliance
A worldwide alliance of non-profit organizations providing support and advancing research for Niemann-Pick Disease communities.
Inpda: International Niemann–Pick Disease Alliance Read More »
