Three Key Documents: Call for membership to existing ERNs
The call for new ERN members is open until 3 Dec 2019. Key documents for the application process are now available.
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Call for membership to the existing ERNs
Wishing to become a member of the ERNS? The European Commission will launch in the coming weeks the first call for new members to join the existing 24 ERNs.
Call for membership to the existing ERNs Read More »
Medical Executive Board Meeting
The Medical Executive Board met in Brussels with representatives of the Subnetworks, Work Packages and the Patient Board as well as the Coordinator and Vice-Coordinators.
Medical Executive Board Meeting Read More »
The 2nd webinar on transition CEMA UZA Belgium by Ann VERHAEGEN and Elien RAETS
The presentation of the second webinar on transition – Center of Inherited Metabolic Diseases CEMA UZA Belgium by Ann VERHAEGEN and Elien REATS
The 2nd webinar on transition CEMA UZA Belgium by Ann VERHAEGEN and Elien RAETS Read More »
Webinar on the Transition from Childhood to Adulthood
The presentations from our first and second webinar on the transition from childhood to adulthood, a MetabERN/SSIEM collaboration.
Webinar on the Transition from Childhood to Adulthood Read More »
CPMS Technical Requirements Guide ver.9
The new CPMS technical guide includes recommended browsers for best user experience, IP addresses to be whitelisted by Hospitals and bandwidth requirements.
CPMS Technical Requirements Guide ver.9 Read More »
MPS Awareness Day: What is your MPS Challenge?
The European patient organisation MPS Europe has asked people with MPS, their relatives and their physicians: What is your MPS Challenge?
MPS Awareness Day: What is your MPS Challenge? Read More »
ERN activity Report for the month of March 2019
ERN activity report of the European Collaborative Platform and Clinical Patient Management System usage for the month of March.
ERN activity Report for the month of March 2019 Read More »
2nd Low Protein Diet Course | 29 March 2019
A collaborative workshop at Hospital 12 de Octubre Madrid sharing practical guidance and recipes for managing low protein diets.
2nd Low Protein Diet Course | 29 March 2019 Read More »
Clinical Patient Management System Meeting Report
On January 14th, 2019, a Clinical Patient Management System meeting is took place at the University Medical Center Groningen (UMCG) in Groningen, The Netherlands.
Clinical Patient Management System Meeting Report Read More »
Collaboration on Ultra-Rare Disorders of Sulfur Metabolism
A collaborative research initiative within MetabERN’s AOA subnetwork investigating ultra-rare disorders of sulfur metabolism.
Collaboration on Ultra-Rare Disorders of Sulfur Metabolism Read More »
3rd International Homocystinurias Meeting | 28 February – 1 March 2019
3rd International Homocystinurias Patient-Expert Meeting on Thursday 28th February – Friday 1st March 2019 in Rome, Italy.
3rd International Homocystinurias Meeting | 28 February – 1 March 2019 Read More »
