MetabERN is a European non-profit network. The EU established the network to facilitate access to the best available care and address the needs across borders for all patients and their families affected by rare inherited metabolic rare diseases (IMDs). This network wants to provide EU-wide services aimed at improving the quality of life of patients and families. For that, we connect the most specialised centres in rare IMDs to promote prevention, accelerate diagnosis and improve standards of care across Europe for patients living with IMDs.
MetabERN is entirely led by patients and experts. Combining patient experience and expert knowledge from across the EU captures the most innovative medical advances and tailors them to patient needs.