The SanFilippo Fighters Patient Organisation and the European Reference Network for Inherited Metabolic Diseases (MetabERN) invite you to the first session of an exciting webinar series exploring various aspects of SanFilippo Syndrome.

This webinar offers a unique opportunity to learn from the following leading experts in the field:

Dr. Serena Gasperini
IRCCS San Gerardo dei Tintori Foundation – Monza, Italy
Topic: SanFilippo Patients in Crisis – When to Visit the Emergency Room or Call a Doctor

Dr. Lucia De Zen
Institute for Maternal and Child Health IRCCS Burlo Garofolo
Topic: Pain Management in SanFilippo Syndrome

Why Attend?
– Learn from internationally recognized experts.
– Gain practical insights to support SanFilippo patients effectively.
– Connect with a community dedicated to advancing knowledge and care.

This webinar is free to attend, but registration is required.

https://www.uza.be/en/activities/sanfilippo-webinar-urgencies-pain-management