LnRiLWhlYWRpbmcuaGFzLWJhY2tncm91bmR7cGFkZGluZzowfQ==
.tb-grid,.tb-grid>.block-editor-inner-blocks>.block-editor-block-list__layout{display:grid;grid-row-gap:25px;grid-column-gap:25px}.tb-grid-item{background:#d38a03;padding:30px}.tb-grid-column{flex-wrap:wrap}.tb-grid-column>*{width:100%}.tb-grid-column.tb-grid-align-top{width:100%;display:flex;align-content:flex-start}.tb-grid-column.tb-grid-align-center{width:100%;display:flex;align-content:center}.tb-grid-column.tb-grid-align-bottom{width:100%;display:flex;align-content:flex-end} .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] > .tb-grid-column:nth-of-type(3n + 1) { grid-column: 1 } .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] > .tb-grid-column:nth-of-type(3n + 2) { grid-column: 2 } .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] > .tb-grid-column:nth-of-type(3n + 3) { grid-column: 3 } .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] .js-wpv-loop-wrapper > .tb-grid { grid-template-columns: minmax(0, 0.3333fr) minmax(0, 0.3333fr) minmax(0, 0.3333fr);grid-column-gap: 20px;grid-row-gap: 20px;grid-auto-flow: row } .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] { text-align: center;justify-content: center;margin-top: 30px; } .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] .page-item a.page-link, .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] .wpv-filter-pagination-link, .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] span.wpv-filter-previous-link, .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] span.wpv-filter-next-link { color: rgba( 27, 95, 193, 1 );background-color: rgba( 255, 255, 255, 1 ); } .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] .page-item a.page-link:hover, .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] a.wpv-filter-pagination-link:hover { color: rgba( 255, 255, 255, 1 );background-color: rgba( 27, 95, 193, 1 ); } .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] .page-item.active span.page-link, .wpv-pagination-nav-links[data-toolset-views-view-pagination-block="cf8b78adde8d1c05769d17fc72823702"] .wpv-pagination-nav-links-item-current span.wpv-filter-pagination-link { color: rgba( 255, 255, 255, 1 );background-color: rgba( 23, 86, 176, 1 ); } h2.tb-heading[data-toolset-blocks-heading="3326d75304abb83138021789bdc39b76"]  { font-size: 14px;line-height: 1.3em;color: rgba( 255, 255, 255, 1 );padding: 10px;margin-top: 0px;margin-bottom: 0px; }  h2.tb-heading[data-toolset-blocks-heading="3326d75304abb83138021789bdc39b76"] a  { color: rgba( 255, 255, 255, 1 );font-size: 15px; } .tb-image{position:relative;transition:transform 0.25s ease}.wp-block-image .tb-image.aligncenter{margin-left:auto;margin-right:auto}.tb-image img{max-width:100%;height:auto;width:auto;transition:transform 0.25s ease}.tb-image .tb-image-caption-fit-to-image{display:table}.tb-image .tb-image-caption-fit-to-image .tb-image-caption{display:table-caption;caption-side:bottom} .wp-block-image.tb-image[data-toolset-blocks-image="cb12c82887f9189c62e07523d95cb6e3"] { max-width: 100%; } .wp-block-image.tb-image[data-toolset-blocks-image="cb12c82887f9189c62e07523d95cb6e3"] img { border-top-right-radius: 15px; } @media only screen and (max-width: 781px) { .tb-grid,.tb-grid>.block-editor-inner-blocks>.block-editor-block-list__layout{display:grid;grid-row-gap:25px;grid-column-gap:25px}.tb-grid-item{background:#d38a03;padding:30px}.tb-grid-column{flex-wrap:wrap}.tb-grid-column>*{width:100%}.tb-grid-column.tb-grid-align-top{width:100%;display:flex;align-content:flex-start}.tb-grid-column.tb-grid-align-center{width:100%;display:flex;align-content:center}.tb-grid-column.tb-grid-align-bottom{width:100%;display:flex;align-content:flex-end} .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] > .tb-grid-column:nth-of-type(2n + 1) { grid-column: 1 } .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] > .tb-grid-column:nth-of-type(2n + 2) { grid-column: 2 } .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] .js-wpv-loop-wrapper > .tb-grid { grid-template-columns: minmax(0, 0.5fr) minmax(0, 0.5fr);grid-column-gap: 20px;grid-row-gap: 20px;grid-auto-flow: row } h2.tb-heading[data-toolset-blocks-heading="3326d75304abb83138021789bdc39b76"]  { font-size: 15px; }  h2.tb-heading[data-toolset-blocks-heading="3326d75304abb83138021789bdc39b76"] a  { font-size: 15px; } .tb-image{position:relative;transition:transform 0.25s ease}.wp-block-image .tb-image.aligncenter{margin-left:auto;margin-right:auto}.tb-image img{max-width:100%;height:auto;width:auto;transition:transform 0.25s ease}.tb-image .tb-image-caption-fit-to-image{display:table}.tb-image .tb-image-caption-fit-to-image .tb-image-caption{display:table-caption;caption-side:bottom} } @media only screen and (max-width: 599px) { .tb-grid,.tb-grid>.block-editor-inner-blocks>.block-editor-block-list__layout{display:grid;grid-row-gap:25px;grid-column-gap:25px}.tb-grid-item{background:#d38a03;padding:30px}.tb-grid-column{flex-wrap:wrap}.tb-grid-column>*{width:100%}.tb-grid-column.tb-grid-align-top{width:100%;display:flex;align-content:flex-start}.tb-grid-column.tb-grid-align-center{width:100%;display:flex;align-content:center}.tb-grid-column.tb-grid-align-bottom{width:100%;display:flex;align-content:flex-end} .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"]  > .tb-grid-column:nth-of-type(1n+1) { grid-column: 1 } .wpv-view-output[data-toolset-views-view-editor="205fe5ecb93fcf4a531572cc89586435"] .js-wpv-loop-wrapper > .tb-grid { grid-template-columns: minmax(0, 1fr);grid-auto-flow: row } h2.tb-heading[data-toolset-blocks-heading="3326d75304abb83138021789bdc39b76"]  { font-size: 15px; }  h2.tb-heading[data-toolset-blocks-heading="3326d75304abb83138021789bdc39b76"] a  { font-size: 15px; } .tb-image{position:relative;transition:transform 0.25s ease}.wp-block-image .tb-image.aligncenter{margin-left:auto;margin-right:auto}.tb-image img{max-width:100%;height:auto;width:auto;transition:transform 0.25s ease}.tb-image .tb-image-caption-fit-to-image{display:table}.tb-image .tb-image-caption-fit-to-image .tb-image-caption{display:table-caption;caption-side:bottom} } 
For Patients
Patients’ Voices
“Patients’ Voices” is a dedicated space where patients can share their stories and make their voices heard. It is a place that highlights the real impact of rare metabolic disease on daily life — both the physical and the emotional aspects. Through personal testimonies, patients can express their challenges as well as the ways they have managed to overcome them, offering support and hope to others who are facing similar experiences. Every voice has the power to inspire and to comfort!
Contributions can take different forms, such as videos or written stories.
