Read the position paper “Rare disease education in Europe and beyond: time to act” published at the Orphanet journal of rare diseases.
Citation: Tumiene B, Peters H, Melegh B, Peterlin B, Utkus A, Fatkulina N, Pfliegler G, Graessner H, Hermanns S, Scarpa M, Blay JY, Ashton S, McKay L, Baynam G. Rare disease education in Europe and beyond: time to act. Orphanet J Rare Dis. 2022 Dec 19;17(1):441. doi: 10.1186/s13023-022-02527-y. PMID: 36536417; PMCID: PMC9761619.
Find other published articles authored by MetabERN members in the publications section.
