Suzàn Genova

Nataliya Foundation & FAST Bulgaria
Suzan Genova
Chairman

Name and Surname: Suzàn Genova

Country: Bulgaria

Contact detail: suzan.m.genova@gmail.com

Association Name: Nataliya Foundation & FAST Bulgaria

Disease-related field: Isovaleric Acidemia (IVA) & Angelman syndrome

Role within the association: Chairperson

Short bio: Suzàn is a mother of a child with two rare diseases, dedicated to advancing research and clinical trials that bring hope to families impacted by rare conditions. Her aim is to build a strong community and act as a bridge for communication and understanding between patients and the clinical community, empowering families to find resilience and strength in facing new challenges. By profession, she is an accountant, but by destiny, she is a caregiver and advocate, serving as an ePAG advocate and SPOC for the AOA Subnetwork at MetabERN and an ePAG advocate at ERN-ITHACA.

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