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Michela Onali

Michela Onali

Stakeholder Manager

Michela has a Bachelor in Language Mediation and a Master’s Degree in Euro-Med policies and cross-border cooperation in the Mediterranean region. 

 

In 2018 she relocated to Italy after working for several years in formal and non-formal education in Turkey and then Canada. Since her return to Europe, she has been involved in Rare Disease advocacy at a European, national and regional level and has contributed to projects and initiatives in Europe aimed at fostering multi-stakekolder collaboration, early and meaningful patient partnership in basic, pre-clinical and translational research for rare diseases. 

 

Michela is a patient with an ultra rare-disease called GNE Myopathy, a muscle disease and congenital disorder of glycosylation (CDG). She is a EURORDIS Summer School and Winter School alumna and a EUPATI Fellow. She speaks Italian, English, Spanish and Turkish.

 

Michela joined MetabERN in May 2022 to support the team in the strategic, tactical and coordination activities of the network. 

Disclaimer

MetabERN is a European Reference Network (ERN) approved by the ERN Board of Member States.
The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

For more information please contact
Prof. Maurizio Scarpa, MD, PhD
MetabERN Coordinator

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