Danny Miller

Name and Surname: Danny Miller

Country: USA

Association name: MEPAN Foundation

Disease related field: PM-MD Subnetwork

Role within the Association: CEO

Short Bio: Danny Miller is the founder and CEO of the MEPAN Foundation, the U.S. 501(c)(3) he started after their sons were diagnosed with MEPAN Syndrome in 2018. He leads the foundation’s research agenda spanning drug repurposing with academic partners and precision-medicine work exploring repurposed drugs and a gene therapy that may help people living with MEPAN. Danny has written about the rare-disease “diagnostic odyssey” in The American Journal of Human Genetics and has also spoken publicly on patient-centered innovation and access