Trustee of Krabbe UK
Krabbe UK
Name and Surname: | Colin Brown |
Country: | Scotland |
Contact detail (e-mail) | colin@ krabbeuk . org |
Association Name: | Krabbe UK |
Disease-related field: | Krabbe Leukodystrophy (LSD) |
Role within the association: | Trustee |
Short bio: | Colin lost his daughter Eilish to Krabbe Disease and is now involved in supporting other families, advocating for Krabbe Disease and helping to raise money to fund research in to Krabbe Disease. |