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Christina Lampe

Christina Lampe

Medical Liaison

After studying medicine at the Humboldt-University of Berlin (Charité), Germany, she completed her internship at the Surgical Department of the same university.

Since 2007, she is consultant in surgery. During 2007, she first worked in a surgical private practice and then changed to Villa Metabolica, at the Department of Pediatric and Adolescent Medicine, University Medical Center of the Johannes Gutenberg-University of Mainz, Germany. She worked there as the attending physician for 150 pediatric and adult patients with MPS I, II, IV and VI.

In January 2014, together with Prof Maurizio Scarpa, she has set up a Center for Rare Diseases at the Dr Horst Schmidt Clinic in Wiesbaden.
She was a coinvestigator on the Phase 3 trials in mucopolysaccharidosis type IV (MPS IV –Morquio syndrome) and the Re-Survey Study in MPS VI (Maroteaux-Lamy), Dr Lampe also is an investigator for the Hunter Outcome Survey and the MPS VI Clinical Surveillance Program (CSP).

Dr Lampe is a member of the Natural History Working Group in MPS II, the Steering Committee in MPS II, and the CSP Publishing Board. One of the authors of the 2011 European recommendations on the diagnosis and multidisciplinary management of MPS II, Dr Lampe’s research has also appeared in journals such as, Journal of Inherited Metabolic Disease, Rheumatology, Molecular Genetics and Metabolism and Orphanet.

Coauthor of guidelines regarding the diagnosis and management of MPS, she is particularly interested in the craniocervical compression and related symptoms, a major neurological complication present in particular on MPSI, IV and VI patients. Member of several boards and advisory council on MPS she has described a severity score system for the grading of spine-cervical complication in MSPIV and VI.

Christina Lampe’s interests are also devoted to correction of multiplex dysplasia in collaboration with orthopedicians for the creation of customized supports for the management of spine malformations, joint problems and hip dysplasia.
Dr Lampe is Scientific Advisor for the German Society for Mucopolysaccharidosis and medical advisor of the Brains for Brain Foundation as well as of several patient associations and medical associations in particular in the East European Countries.

Disclaimer

MetabERN is a European Reference Network (ERN) approved by the ERN Board of Member States.
The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern
The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

For more information please contact
Prof. Maurizio Scarpa, MD, PhD
MetabERN Coordinator

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