Glycogen Storage diseases (hepatic and muscular) (CFAO)
Role within association:
Fonder Presidente and Vice Presidente
Short bio – 50 words max (optional):
As a parent concerned with GSD (Glycogen Storage Disease) and professional in the field of Rare Diseases. She has a unique position to open new perspectives and build cooperation’s with HCP and governmental institutions. e-PAG volunteer Eurordis, advocating for patients’ rights and access to diagnostic and quality care for rare diseases. Solidarity and engagement are some of her core values.
To provide the best possible service, we use technical, statistical and third-party cookies on this site. Continuing the navigation you consent to use them. AcceptRejectRead More
Privacy & Cookies Policy
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.