Anne Hugon

AFG - Association Francophone des Glycogénoses
Anne Hugon
Founder President and Vice President

Name and surname: Anne Hugon

Country: France

Contact detail (e-mail): ahugon@wanadoo.fr (anne.hugon@aphp.fr)

Association Name: AFG – Association Francophone des Glycogénoses [French Glycogen Storage Diseases – GSD]

Disease-related field: Glycogen Storage diseases (hepatic and muscular) (CFAO)

Role within the association: Founder President and Vice President

Short bio: As a parent concerned with GSD (Glycogen Storage Disease)  and professional in the field of Rare Diseases, she has a unique position to open new perspectives and build cooperation’s with HCP and governmental institutions. e-PAG volunteer at Eurordis, advocating for patients’ rights and access to diagnostic and quality care for rare diseases. Solidarity and engagement are some of her core values.

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