Community liaison

Ana Verde

Portuguese Association for CDG (APCDG)

Name and Surname:	Ana Verde
Country:	Portugal
Contact detail:	wcdgo@ worldcdg. org
Association Name:	Portuguese Association for CDG (APCDG)
Disease-related field:	Congenital Disorders of Glycosylation, CDG
Role within the association:	Community liaison and social media manager
Short bio:	Ana Verde aspires to be a patient advocate. She has a degree in Languages, Literatures and Cultures and she is a family member of a person living with Congenital Disorders of Glycosylation, CDG. Because of this, she has been triggered to want to be the voice for people who cannot. Ana is a volunteer for the Portuguese Association for CDG (APCDG) and works with the international research network CDG & Allies. At the moment, she is helping with the organization of the 6th World CDG Conference in 2023, as well as the communication and promotion of the activities promoted by APCDG and CDG & Allies.